Biobanking in a constantly developing medical world

SA Artene, ME Ciurea, SO Purcaru… - The Scientific World …, 2013 - Wiley Online Library
Biobank is a very sophisticated system that consists of a programmed storage of biological
material and corresponding data. Biobanks are created to be used in medical research, in …

Biobankonomics: developing a sustainable business model approach for the formation of a human tissue biobank

J Vaught, J Rogers, T Carolin… - Journal of the National …, 2011 - academic.oup.com
The preservation of high-quality biospecimens and associated data for research purposes is
being performed in variety of academic, government, and industrial settings. Often these are …

Between data providers and concerned citizens: Exploring participation in precision public health in Switzerland

N Bühler, A Frahsa, R Morand Bourqui… - Public …, 2024 - journals.sagepub.com
This empirical article explores the dynamics of exchange and reciprocity between cohorters,
that is, study organizers, and cohortees, that is, study participants. Drawing on literature on …

Biobank governance: heterogeneous modes of ordering and democratization

H Gottweis, G Lauss - Journal of community genetics, 2012 - Springer
The great interest in biobanks, the related, substantial investments, and the expectations
connected with them raises the question of how to explain the relative successes and …

Populations as brands in medical research: placing genes on the global genetic atlas

A Tupasela - BioSocieties, 2017 - Springer
The collection, use, and distribution of human tissue samples have stressed the new
pathways in which human body parts and related information are becoming productive. This …

[HTML][HTML] Accomplishing an adaptive clinical trial for cancer: Valuation practices and care work across the laboratory and the clinic

J Swallow, A Kerr, CK Chekar… - Social Science & …, 2020 - Elsevier
A new generation of adaptive, multi-arm clinical trials has been developed in cancer
research including those offering experimental treatments to patients based on the genomic …

Authentic, Original, and Valuable: Stabilizing the Genetic Identity in Non‐human and Human Populations in Finland

A Tupasela, S Tamminen - Studies in Ethnicity and Nationalism, 2015 - Wiley Online Library
The idea of genetic authenticity and origin has been an important issue within genetics for
decades for scientific, political, and economic reasons. The question of where species and …

Data hugging in European biobank networks

A Tupasela - Science as Culture, 2021 - Taylor & Francis
The sharing, circulation, distribution, and use of human tissue samples and related data
have become a major political and scientific pre-occupation during the past two decades. In …

Biobanking: Social, political and ethical aspects

R Tutton - eLS, 2010 - Wiley Online Library
Prospective, population‐based biobanks designed for research into genetic, environmental
and lifestyle factors associated with common, complex diseases or the genetic basis of drug …

Genome Finland: From rare diseases to data economy

I Helén, K Snell, H Tarkkala, A Tupasela - 2024 - library.oapen.org
Genome Finland tells a story of genomic medicine in Finland from the study of rare Finnish
diseases in the 1960s and 1970s to the implementation of personalized medicine in the …