Promoting psychosocial adjustment in individuals born with cleft lip and/or palate and their families: current clinical practice in the United Kingdom

NM Stock, F Zucchelli, N Hudson… - The Cleft Palate …, 2020 - journals.sagepub.com
Objectives: The importance of psychosocial aspects of care has received growing
recognition in recent years. However, the evidence base for psychosocial intervention …

[图书][B] Grandparenting children with disabilities

M Harrington Meyer, Y Abdul-Malak… - 2020 - Springer
Amber Tatro was born with spina bifida and went on to win a 1984 Supreme Court case.
Amber had partial paralysis, impaired speech, and difficulty urinating on her own. Her family …

Raising a child with craniosynostosis: Psychosocial adjustment in caregivers

B Costa, W Edwards… - The Cleft Palate …, 2023 - journals.sagepub.com
Objective While knowledge of the psychosocial impact of craniofacial conditions is growing,
literature regarding the impact on parents remains limited. Parents of children born with a …

Benefit Finding in Craniofacial Conditions: A Qualitative Analysis of Patient and Parent Perspectives

AK Choi, M Korhummel, CC Belza… - The Cleft Palate …, 2025 - journals.sagepub.com
Objective Craniofacial conditions (CFCs) can be associated with adverse effects on quality
of life (QoL). However, few studies have examined perceived benefits related to CFCs. This …

“I can't provide what my child needs”: Early feeding experiences of caregivers of children with craniofacial microsomia

B Costa, NM Stock, AL Johns, CM McKinney… - Journal of Pediatric …, 2024 - Elsevier
Purpose Craniofacial microsomia (CFM) is a congenital condition that can be associated
with feeding challenges in infants. As part of the larger 'Craniofacial microsomia …

Psychological distress and related factors among parents having children with cleft lip and palate disorder: evidence from Sri Lanka

AMK Senavirathne, P Jayasekara… - Journal of Dental …, 2022 - journals.lww.com
Background: Raising a child with a cleft lip and or palate disorder (CLPD) brings many
challenges to the parents. Having children with CLPD can be a source of parental …

# Cleftlip/Palate: What Is the World Talking About?

AS Hudson, AD Morzycki… - The Cleft Palate …, 2020 - journals.sagepub.com
Objective: Studies have begun analyzing how the world converses on social media
platforms about medical/surgical topics. This study's objective was to examine how cleft lip …

Parent's experiences during orthodontic treatment of their children with cleft lip and palate: Phenomenological study

MM Imani, A Jalali, P Nouri… - The Cleft Palate …, 2021 - journals.sagepub.com
Objectives: Cleft lip and palate (CLP) is a congenital anomaly that affects not only the
patients but also their family members and companions. Identifying the problems …

The experience of families receiving a diagnosis of craniosynostosis for their child

G Hall - 2024 - search.proquest.com
Objective: Receiving a diagnosis of a congenital craniofacial anomaly (CFA) not onlyaffects
the psychological health of the individual themselves, but also the wider familyunit. Previous …

[PDF][PDF] Language Intervention for Late Talkers: The Experiences of Speech-Language Pathologists in Malaysia.

NH Tukiran, NAM Zain… - Malaysian Journal of …, 2023 - journalarticle.ukm.my
ABSTRACT A few studies have investigated the practise patterns of Malaysian speech-
language pathologists (SLPs) when working with children with speech and language …