Shared decision-making in dementia: A review of patient and family carer involvement

LM Miller, CJ Whitlatch, KS Lyons - Dementia, 2016 - journals.sagepub.com
This paper reviews empirical findings concerning the decision-making process of persons
with dementia and their family carers, with a particular focus on the extent and determinants …

Perspectives of people with dementia and carers on advance care planning and end-of-life care: A systematic review and thematic synthesis of qualitative studies

M Sellars, O Chung, L Nolte, A Tong… - Palliative …, 2019 - journals.sagepub.com
Background: Advance care planning aims to ensure that care received during serious and
chronic illness is consistent with the person's values, preferences and goals. However, less …

Decision-making on behalf of people living with dementia: how do surrogate decision-makers decide?

D Fetherstonhaugh, L McAuliffe, M Bauer… - Journal of Medical …, 2017 - jme.bmj.com
Background For people living with dementia, the capacity to make important decisions about
themselves diminishes as their condition advances. As a result, important decisions …

Planning ahead with dementia: what role can advance care planning play? A review of opportunities and challenges

F Bosisio, RJ Jox, L Jones, ER Truchard - Swiss medical weekly, 2018 - smw.ch
Advance directives emerged in the 1960s with the goal of empowering people to exert
control over their future medical decisions. However, it has become apparent, over recent …

Disorders of consciousness: responding to requests for novel diagnostic and therapeutic interventions

RJ Jox, JL Bernat, S Laureys, E Racine - The Lancet Neurology, 2012 - thelancet.com
Severe brain injury can leave patients with chronic disorders of consciousness. Because of
impaired responsiveness, many of these patients have traditionally been regarded as …

A qualitative study exploring the difficulties influencing decision making at the end of life for people with dementia

K Lamahewa, R Mathew, S Iliffe, J Wilcock… - Health …, 2018 - Wiley Online Library
Background Dementia is a progressive neurodegenerative condition characterized by
declining functional and cognitive abilities. The quality of end of life care for people with …

[HTML][HTML] Artificial intelligence for caregivers of persons with Alzheimer's disease and related dementias: systematic literature review

B Xie, C Tao, J Li, RC Hilsabeck… - JMIR medical …, 2020 - medinform.jmir.org
Background: Artificial intelligence (AI) has great potential for improving the care of persons
with Alzheimer's disease and related dementias (ADRD) and the quality of life of their family …

Equity in clinical care and research involving persons with disorders of consciousness

MA Rubin, A Lewis, CJ Creutzfeldt, GS Shrestha… - Neurocritical Care, 2024 - Springer
People with disorders of consciousness (DoC) are characteristically unable to
synchronously participate in decision-making about clinical care or research. The inability to …

A co-design process developing heuristics for practitioners providing end of life care for people with dementia

N Davies, R Mathew, J Wilcock, J Manthorpe… - BMC palliative …, 2016 - Springer
Background The end of life for someone with dementia can present many challenges for
practitioners; such as, providing care if there are swallowing difficulties. This study aimed to …

The role of palliative care in patients with neurological diseases

GD Borasio - Nature reviews Neurology, 2013 - nature.com
Palliative care aims to improve the quality of life of patients and their families affected by life-
threatening illness. This approach applies to a large and growing proportion of neurological …