Systematic review of conceptual, age, measurement and valuation considerations for generic multidimensional childhood patient-reported outcome measures

J Kwon, L Freijser, E Huynh, M Howell, G Chen… - …, 2022 - Springer
Abstract Background and Aims Patient-reported outcome measures (PROMs) for children
(aged≤ 18 years) present methodological challenges. PROMs can be categorised by their …

[HTML][HTML] EQ-5D-Y as a health-related quality of life instrument for children and adolescents: the instrument's characteristics, development, current use, and challenges …

S Kreimeier, W Greiner - Value in Health, 2019 - Elsevier
Objectives Interest in the measurement of health-related quality of life (HRQoL) in children
and adolescents has been increasing, and appropriate instruments are required for this …

Using latent class analysis to model preference heterogeneity in health: a systematic review

M Zhou, WM Thayer, JFP Bridges - Pharmacoeconomics, 2018 - Springer
Background Latent class analysis (LCA) has been increasingly used to explore preference
heterogeneity, but the literature has not been systematically explored and hence best …

Valuation survey of EQ-5D-Y based on the international common protocol: development of a value set in Japan

T Shiroiwa, S Ikeda, S Noto… - Medical Decision …, 2021 - journals.sagepub.com
Background EQ-5D-Y is a preference-based measure for children and adolescents (aged 8–
15 y). This is the first study to develop an EQ-5D-Y value set for converting EQ-5D-Y …

EQ-5D-Y value set for Slovenia

V Prevolnik Rupel, M Ogorevc… - …, 2021 - Springer
Background A value set for the EuroQoL 5-Dimensions (EQ-5D)-Y in Slovenia is not yet
available, making the calculation of quality-adjusted life-years (QALYs) for children and …

An updated systematic review of studies mapping (or cross-walking) measures of health-related quality of life to generic preference-based measures to generate utility …

C Mukuria, D Rowen, S Harnan, A Rawdin… - … health economics and …, 2019 - Springer
Background Mapping is an increasingly common method used to predict instrument-specific
preference-based health-state utility values (HSUVs) from data obtained from another health …

A value set for the EQ-5D-Y-3L in the Netherlands

B Roudijk, A Sajjad, B Essers, S Lipman… - …, 2022 - Springer
Abstract Background and Objective There is increasing interest in preference-accompanied
measures of health for paediatric populations. The child-friendly EQ-5D version, EQ-5D-Y …

Parental health spillover effects of paediatric rare genetic conditions

Y Wu, H Al-Janabi, A Mallett, C Quinlan… - Quality of Life …, 2020 - Springer
Purpose The complexity and severity of rare genetic conditions pose substantial burden to
families. While the importance of spillovers on carers' health in resource allocation decisions …

[HTML][HTML] A review of the psychometric performance of selected child and adolescent preference-based measures used to produce utilities for child and adolescent …

D Rowen, AD Keetharuth, E Poku, R Wong… - Value in Health, 2021 - Elsevier
Objective This review examined the psychometric performance of 4 generic child-and
adolescent-specific preference-based measures that can be used to produce utilities for …

Using age-specific values for pediatric HRQoL in cost-effectiveness analysis: is there a problem to be solved? If so, how?

NJ Devlin, T Pan, M Sculpher, M Jit, E Stolk… - …, 2023 - Springer
Value sets for the EQ-5D-Y-3L published to date appear to have distinctive characteristics
compared with value sets for corresponding adult instruments: in many cases, the value for …