Parents' experiences of being involved in medical decision-making for their child with a life-limiting condition: A systematic review with narrative synthesis

K Polakova, F Ahmed, K Vlckova… - Palliative …, 2024 - journals.sagepub.com
Background: Parental involvement in the decision-making processes about medical
treatment for children with life-limiting conditions is recognised as good practice. Previous …

[HTML][HTML] Essential Elements of Home-based Palliative Care Model: A Rapid Review

M Kirtania, A Katta - Indian Journal of Palliative Care, 2023 - ncbi.nlm.nih.gov
The need for palliative care is increasing due to the rising burden of non-communicable
diseases and some communicable diseases. Chronic illnesses demand patient-centred …

Critical care nurses' knowledge and attitudes and their perspectives toward promoting advance directives and end-of-life care

MH Ho, HC Liu, JY Joo, JJ Lee, MF Liu - BMC nursing, 2022 - Springer
Background End-of-life care can be a difficult and challenging process for critical care
nurses in intensive care units (ICUs) due to the care plan shifts from providing life-sustaining …

Being heard: A qualitative study of Lithuanian health care professionals' perceptions of dignity at the end-of-life

R Butkevičienė, J Kuznecovienė, D Harrison, E Peičius… - Medicina, 2021 - mdpi.com
Background: The literature on professionals' perceptions of dignity at the end-of-life (EOL)
shows that there is a need for studies set in different cultural contexts. Lithuania represents …

[HTML][HTML] Dignity enhanced through faith & family support in palliative care: a qualitative study

SD Sailian, Y Salifu, N Preston - BMC Palliative Care, 2024 - ncbi.nlm.nih.gov
Background Dignity is integral to palliative care. Illness can diminish it, causing
hopelessness and the wish to hasten death. Yet, dignity is a complex multidimensional …

[HTML][HTML] Psychosocial burden in transfusion dependent beta-thalassemia patients and its impact on the quality of life and the problem of dignity

K Wangi, B Birriel, C Smith - Journal of Taibah University Medical …, 2023 - ncbi.nlm.nih.gov
Beta-thalassemia major is a genetic blood disorder that impacts hemoglobin production with
several symptoms that decrease quality of life in patients. Blood transfusions may help them …

A qualitative exploration of goals-of-care discussions with seriously ill patients in Jordan

A Albashayreh, S Gilbertson-White… - … & supportive care, 2023 - cambridge.org
Objectives This study aims to explore seriously ill patients' experiences during goals-of-care
discussions and perspectives of end-of-life (EOL) decision-making in the Middle Eastern …

Palliative care models and innovations in 4 Eastern Mediterranean Region countries: a case-based study

E Krakauer, SA Al-Shammary, BP Duraisamy… - Eastern Mediterranean …, 2022 - apps.who.int
Background: There is a global agreement that palliative care should be universally
accessible. However, in low-and middle-income countries and conflict zones, most people …

New Zealand hospice staff perspectives on 'Xcellent Gowns' for big bodied palliative care patients: a qualitative study

J Phillips, E Wood, T Loveard, E McKinlay… - Journal of Primary …, 2023 - CSIRO Publishing
Introduction A handful of reports detail efforts to redesign traditional hospital gowns to
address common concerns related to patient comfort and privacy for big bodied patients …

Family caregivers in cancer: Experiences, capacities, and solutions

S Eghtedar, L Almasi, M Jasemi… - Nursing And …, 2023 - unmf.umsu.ac.ir
Background & Aims: The cancer diagnosis affects the patients and significantly impacts the
lives of family members. Family caregivers face multiple challenges that require …