Health and access to health services for people with disability in Australia: data and data gaps

N Fortune, RH Madden, S Clifton - International Journal of Environmental …, 2021 - mdpi.com
The right of people with disability to enjoyment of the highest attainable standard of health
without discrimination on the basis of disability is enshrined in the United Nations …

A scoping review documenting cancer outcomes and inequities for adults living with intellectual and/or developmental disabilities

M Stirling, A Anderson, H Ouellette-Kuntz… - European Journal of …, 2021 - Elsevier
Introduction Emerging evidence suggests adults with intellectual and/or developmental
disabilities (IDD) may be at risk of inequities in cancer experiences and outcomes …

COVID-19 infection and outcomes in a population-based cohort of 17 203 adults with intellectual disabilities compared with the general population

A Henderson, M Fleming, SA Cooper… - J Epidemiol …, 2022 - jech.bmj.com
Background Adults with intellectual disabilities (ID) may be at higher risk of COVID-19 death.
We compared COVID-19 infection, severe infection, mortality, case fatality and excess …

Factors associated with death in people with intellectual disability

S Reppermund, P Srasuebkul, K Dean… - Journal of Applied …, 2020 - Wiley Online Library
Background People with intellectual disability (ID) experience higher mortality than the
general population. This study examines factors contributing to deaths in people with …

Stage IV breast, colorectal, and lung cancer at diagnosis in adults living with intellectual or developmental disabilities: A population‐based cross‐sectional study

AL Mahar, K Biggs, RL Hansford, S Derksen… - Cancer, 2024 - Wiley Online Library
Background Cancer is a leading cause of death among people living with intellectual or
developmental disabilities (IDD). Although studies have documented lower cancer …

Healthcare services utilization among people with intellectual disability and comparison with the general population

J Maltais, D Morin, MJ Tassé - Journal of Applied Research in …, 2020 - Wiley Online Library
Background Studies have reported unmet health needs in individuals with intellectual
disability (ID). This study illustrated and analysed patterns of healthcare services utilization …

What are the priorities for health data for adults with intellectual and developmental disabilities? It varies by whom you ask

G Krahn, K Cargill‐Willis, M Raymond… - Journal of Policy and …, 2023 - Wiley Online Library
Numerous countries have recognized the need for improved surveillance data on the health
of persons with intellectual and developmental disabilities (IDD). Federal agencies need …

Data linkage: Canadian and Australian perspectives on a valuable methodology for intellectual and developmental disability research

R Balogh, H Leonard, J Bourke… - Intellectual and …, 2019 - meridian.allenpress.com
Data linkage holds great promise for generating new information about people with
intellectual and developmental disabilities (IDD) as a population, yet few centers have …

What brings adults with Down syndrome to the hospital? A retrospective review of a Spanish cohort between 1997 and 2014

P Aparicio, R Barba, F Moldenhauer… - Journal of Applied …, 2023 - Wiley Online Library
Objectives To describe the clinical and epidemiological characteristics of adult patients with
Down syndrome admitted to Spanish hospitals between 1997 and 2014. Secondary goals …

Respiratory-associated deaths in people with intellectual disabilities: a systematic review and meta-analysis

M Truesdale, C Melville, F Barlow, K Dunn… - BMJ open, 2021 - bmjopen.bmj.com
Objective To review and synthesise evidence on rates of respiratory-associated deaths and
associated risk factors in the intellectual disability population. Design Systematic review and …