Roles, outcomes, and enablers within research partnerships: A rapid review of the literature on patient and public involvement and engagement in health research

AW Karlsson, A Kragh-Sørensen, K Børgesen… - Research involvement …, 2023 - Springer
Background Recent studies mention a need to investigate partnership roles and dynamics
within patient and public involvement and engagement (PPIE) in health research, and how …

Clarifying the mechanisms and resources that enable the reciprocal involvement of seldom heard groups in health and social care research: a collaborative rapid …

É Ní Shé, S Morton, V Lambert… - Health …, 2019 - Wiley Online Library
Objective Public and patient involvement is increasingly embedded as a core activity in
research funding calls and best practice guidelines. However, there is recognition of the …

Too vulnerable to involve? Challenges of engaging vulnerable groups in the co-production of public services through research

J Amann, J Sleigh - International Journal of Public Administration, 2021 - Taylor & Francis
Involving the public in the co-production of research to inform public service delivery can
help to ensure the appropriateness of services. However, vulnerable groups are often …

Effects of oral probiotic supplements on vaginal microbiota during pregnancy: a randomised, double‐blind, placebo‐controlled trial with microbiome analysis

S Husain, J Allotey, Z Drymoussi… - … Journal of Obstetrics …, 2020 - Wiley Online Library
Objective To determine the effects on the vaginal microbiota of an oral probiotic preparation
administered from early pregnancy. Design Randomised, double blind, placebo‐controlled …

Breast, prostate, colorectal, and lung cancer incidence and risk factors in women who have sex with women and men who have sex with men: a cross-sectional and …

S Underwood, G Lyratzopoulos, CL Saunders - Cancers, 2023 - mdpi.com
Simple Summary In this analysis, we look at the number of new breast, lung, colorectal and
prostate cancer diagnoses among women who have sex with women and men who have …

Visualization of cardiac implantable electronic device data for older adults using participatory design

R Ahmed, T Toscos, RR Ghahari… - Applied clinical …, 2019 - thieme-connect.com
Patients with heart failure (HF) are commonly implanted with cardiac resynchronization
therapy (CRT) devices as part of their treatment. Presently, they cannot directly access the …

[HTML][HTML] The international Perinatal Outcomes in the Pandemic (iPOP) study: protocol

SJ Stock, H Zoega, M Brockway… - Wellcome open …, 2021 - ncbi.nlm.nih.gov
Preterm birth is the leading cause of infant death worldwide, but the causes of preterm birth
are largely unknown. During the early COVID-19 lockdowns, dramatic reductions in preterm …

Brief Engagement and Acceptance Coaching for Hospice Settings (the BEACHeS study): results from a Phase I study of acceptability and initial effectiveness in people …

NJ Hulbert-Williams, SF Norwood, D Gillanders… - BMC palliative …, 2021 - Springer
Objectives Transitioning into palliative care is psychologically demanding for people with
advanced cancer, and there is a need for acceptable and effective interventions to support …

Patient and public involvement for ethnic minority research: an urgent need for improvement

W Ekezie, A Routen, S Denegri… - Journal of the Royal …, 2021 - journals.sagepub.com
Inequalities in health by ethnicity persist in the UK, and there is a history of health research
failing to address the needs of ethnic minorities. The COVID-19 pandemic has further …

Co-producing progression criteria for feasibility studies: a partnership between patient contributors, clinicians and researchers

HML Young, S Goodliffe, M Madhani, K Phelps… - International journal of …, 2019 - mdpi.com
There is a lack of guidance for developing progression criteria (PC) within feasibility studies.
We describe a process for co-producing PC for an ongoing feasibility study. Patient …