Daily symptom burden in end-stage chronic organ failure: a systematic review

DJA Janssen, MA Spruit, EFM Wouters… - Palliative …, 2008 - journals.sagepub.com
Chronic diseases are nowadays the major cause of morbidity and mortality worldwide.
Patients with end-stage chronic organ failure may suffer daily from distressful physical and …

Measuring and improving the quality of dying and death

DL Patrick, JR Curtis, RA Engelberg… - Annals of internal …, 2003 - acpjournals.org
Improving end-of-life experience is a major challenge to successful aging. Deaths that are
reasonably free of discomfort, in accordance with patients' wishes, and within acceptable …

In search of a good death: observations of patients, families, and providers

KE Steinhauser, EC Clipp, M McNeilly… - Annals of internal …, 2000 - acpjournals.org
Despite a recent increase in the attention given to improving end-of-life care, our
understanding of what constitutes a good death is surprisingly lacking. The purpose of this …

[HTML][HTML] A measure of the quality of dying and death: Initial validation using after-death interviews with family members

JR Curtis, DL Patrick, RA Engelberg, K Norris… - Journal of pain and …, 2002 - Elsevier
A reliable and valid measure of the quality of the dying experience would help clinicians and
researchers improve care for dying patients. To describe the validity of an instrument …

[HTML][HTML] Evaluating the quality of dying and death

DL Patrick, RA Engelberg, JR Curtis - Journal of pain and symptom …, 2001 - Elsevier
We propose a model for evaluating the quality of dying and death based on concepts
elicited from literature review, qualitative interviews with persons with and without chronic …

Quality indicators for end-of-life care in the intensive care unit

EB Clarke, JR Curtis, JM Luce, M Levy… - Critical care …, 2003 - journals.lww.com
Objective The primary goal of this study was to address the documented deficiencies in end-
of-life care (EOLC) in intensive care unit settings by identifying key EOLC domains and …

Palliative and end-of-life care in the African American community

LV Crawley, R Payne, J Bolden, T Payne… - Jama, 2000 - jamanetwork.com
AFRICAN AMERICANS AND OTHER MINORITIES UNDER-use palliative and hospice care,
even when they have access to this care. Statistics from the National Hospice and Palliative …

Racial variations in end‐of‐life care

FP Hopp, SA Duffy - Journal of the American Geriatrics Society, 2000 - Wiley Online Library
OBJECTIVES: To identify differences in advanced care planning and end‐of‐life decision‐
making between whites and blacks aged 70 and older. DESIGN: The Asset and Health …

[HTML][HTML] The Quality of Dying and Death Questionnaire (QODD): empirical domains and theoretical perspectives

L Downey, JR Curtis, WE Lafferty, JR Herting… - Journal of pain and …, 2010 - Elsevier
We used exploratory factor analysis within the confirmatory analysis framework, and data
provided by family members and friends of 205 decedents in Missoula, Montana, to …

Psychometric characteristics of a quality of communication questionnaire assessing communication about end-of-life care

R Engelberg, L Downey, JR Curtis - Journal of palliative medicine, 2006 - liebertpub.com
The importance of good clinician–patient communication to quality end-of-life care has been
well documented yet there are no validated measures that allow patients to assess the …