Five priorities of African genomics research: the next frontier
To embrace the prospects of accurately diagnosing thousands of monogenic conditions,
predicting disease risks for complex traits or diseases, tailoring treatment to individuals' …
predicting disease risks for complex traits or diseases, tailoring treatment to individuals' …
Mutuality as a method: advancing a social paradigm for global mental health through mutual learning
Purpose Calls for “mutuality” in global mental health (GMH) aim to produce knowledge more
equitably across epistemic and power differences. With funding, convening, and publishing …
equitably across epistemic and power differences. With funding, convening, and publishing …
African genomic data sharing and the struggle for equitable benefit
M Ramsay - Patterns, 2022 - cell.com
Genomic and related health data from Africa remain scarce and are extremely valuable, due
to an abundance of variants often rare or absent in the rest of the world. Insights from such …
to an abundance of variants often rare or absent in the rest of the world. Insights from such …
Data as scientific currency: Challenges experienced by researchers with sharing health data in sub-Saharan Africa
J Chabilall, Q Brown, N Cengiz, K Moodley - PLOS Digital Health, 2024 - journals.plos.org
Innovative information-sharing techniques and rapid access to stored research data as
scientific currency have proved highly beneficial in healthcare and health research. Yet …
scientific currency have proved highly beneficial in healthcare and health research. Yet …
Towards equitable genomics governance in Africa: guiding principles from theories of global health governance and the African moral theory of Ubuntu
The post‐genomics era promises a revolution characterized by precision medicine and the
integration of genomics into almost every area of biomedical research. At the same time …
integration of genomics into almost every area of biomedical research. At the same time …
Genomics and Health Data Governance in Africa: Democratize the Use of Big Data and Popularize Public Engagement
NS Munung, CD Royal, C de Kock… - Hastings Center …, 2024 - Wiley Online Library
Effectively addressing ethical issues in precision medicine research in Africa requires a
holistic social contract that integrates biomedical knowledge with local cultural values and …
holistic social contract that integrates biomedical knowledge with local cultural values and …
A vision for empirical ELSI along the R&D pipeline
ramya M. rajagopalan a, b, Julie Cakici a, c and Cinnamon S. Bloss a, ba herbert Wertheim
school of public health and human longevity science, Uc san Diego, la Jolla, UsA; b center …
school of public health and human longevity science, Uc san Diego, la Jolla, UsA; b center …
Rethinking benefit sharing in collaborative human genetic research from an afrocommunitarian perspective
This article draws on reflections about humanness, friendliness and partiality, in the writings
of Afro-communitarians to develop principles for thinking critically about why benefit sharing …
of Afro-communitarians to develop principles for thinking critically about why benefit sharing …
Getting it right: how public engagement might (and might not) help us determine what is equitable in genomics and precision medicine
SC Hull, LC Brody, R Sterling - The American Journal of Bioethics, 2023 - Taylor & Francis
The timing of this special issue of AJOB probing whether public engagement (PE) 1 might
help achieve equity in genomics is no coincidence. While many issues discussed by the …
help achieve equity in genomics is no coincidence. While many issues discussed by the …
The interconnectedness between Ubuntu principles and generative artificial intelligence in distance higher education institutions
The interconnectedness of African philosophical principles of Ubuntu with generative
artificial intelligence may provide an inclusive approach to distance higher education. This …
artificial intelligence may provide an inclusive approach to distance higher education. This …