Digital technologies for children and parents sharing self-management in childhood chronic or long-term conditions: A scoping review

J Edwards, J Waite-Jones, T Schwarz, V Swallow - Children, 2021 - mdpi.com
Worldwide, the prevalence of chronic (or long-term) conditions in children and young people
from birth to 18 years (children) is increasing. Promoting competent and effective self …

Promotion of self-management of chronic disease in children and teenagers: scoping review

M Catarino, Z Charepe, C Festas - Healthcare, 2021 - mdpi.com
Background: The scientific literature describes that self-management of chronic illness leads
to improved health outcomes. Knowledge about interventions that promote self …

Transitioning toward independence: enhancing collaborative self-management of children with type 1 diabetes

YJ Cha, A Saxena, A Wou, J Lee… - Proceedings of the …, 2022 - dl.acm.org
Although child participation is required for successful Type 1 Diabetes (T1D) management, it
is challenging because the child's young age and immaturity make it difficult to perform self …

The iCanCope pain self-management application for adolescents with juvenile idiopathic arthritis: a pilot randomized controlled trial

C Lalloo, LR Harris, AS Hundert, R Berard… - …, 2021 - academic.oup.com
Objectives To evaluate the feasibility and preliminary effectiveness of iCanCope with Pain
(iCanCope), a smartphone-based pain self-management program, in adolescents with JIA …

Co‐management of communication and care in adolescent and young adult oncology

BA Sisk, M Keenan, EC Kaye, JN Baker… - Pediatric blood & …, 2022 - Wiley Online Library
Background Clinicians have an ethical and practical imperative to engage adolescents and
young adults (AYAs) with cancer in communication and care. Many young AYAs have …

[HTML][HTML] Exploring user visions for modeling mHealth apps toward supporting patient-parent-clinician collaboration and shared decision-making when treating …

SK Johansen, AM Kanstrup, K Haseli… - JMIR Human …, 2023 - humanfactors.jmir.org
Background: Long-standing knee pain is one of the most common reasons for adolescents
(aged 10-19 years) to consult general practice. Generally, 1 in 2 adolescents will continue to …

It's like an educated guessing game: Parents' strategies for collaborative diabetes management with their children

YJ Cha, A Wou, A Saxena, J Lee… - Proceedings of the …, 2023 - dl.acm.org
Children with Type 1 Diabetes (T1D) face many challenges with keeping their blood glucose
levels within a healthy range because they cannot manage their illness by themselves. To …

Behavioral Dilemmas and Support Requirements of Self-Management for Chinese Adolescents with Epilepsy During Transition Readiness: A Mixed-Methods Study

C Cui, H Zhou, W Chen, S Li… - Patient preference and …, 2023 - Taylor & Francis
Objective The study aimed to describe and explore the behavioral dilemmas and support-
requirement characteristics of self-management for epileptic adolescents during transition …

Parental entrustment of healthcare responsibilities to youth with chronic conditions: A concept analysis

L Pitts, PA Patrician, W Landier, T Kazmerski… - Journal of Pediatric …, 2024 - Elsevier
Purpose Chronic health conditions impact nearly 40% of children in the United States,
necessitating parents/caregivers to entrust healthcare responsibilities to youth aging into …

Adolescent perspectives on negotiating self-management responsibilities for type 1 diabetes with their parents

E Tuohy, P Gallagher, C Rawdon, N Murphy… - Patient Education and …, 2023 - Elsevier
Objective The overall purpose of this study was to explore adolescent perspectives on
communicating about self-management of type 1 diabetes (T1D) and negotiating …