[HTML][HTML] The social licence for data-intensive health research: towards co-creation, public value and trust
Abstract Background The rise of Big Data-driven health research challenges the assumed
contribution of medical research to the public good, raising questions about whether the …
contribution of medical research to the public good, raising questions about whether the …
[HTML][HTML] Implementation of data access and use procedures in clinical data warehouses. A systematic review of literature and publicly available policies
Background The promises of improved health care and health research through data-
intensive applications rely on a growing amount of health data. At the core of large-scale …
intensive applications rely on a growing amount of health data. At the core of large-scale …
Should free-text data in electronic medical records be shared for research? A citizens' jury study in the UK
Background Use of routinely collected patient data for research and service planning is an
explicit policy of the UK National Health Service and UK government. Much clinical …
explicit policy of the UK National Health Service and UK government. Much clinical …
[HTML][HTML] Accessing routinely collected health data to improve clinical trials: recent experience of access
A Macnair, SB Love, ML Murray, DC Gilbert… - Trials, 2021 - Springer
Background Routinely collected electronic health records (EHRs) have the potential to
enhance randomised controlled trials (RCTs) by facilitating recruitment and follow-up …
enhance randomised controlled trials (RCTs) by facilitating recruitment and follow-up …
A novel mixed methods approach for integrating not-for-profit service data via qualitative geographic information system to explore authentic experiences of ill-health …
Meeting the mental health needs of rural populations is challenging internationally, with few
methods and scarce data available to inform site-specific planning. We developed a mixed …
methods and scarce data available to inform site-specific planning. We developed a mixed …
La transparencia institucional y mediática del coronavirus. Un análisis de los portales de datos y de los medios de comunicación digitales en Iberoamérica
M Díez-Garrido, CR Farpón - Revista Latina de …, 2020 - nuevaepoca.revistalatinacs.org
Introducción. La emergencia sanitaria producida por el virus COVID-19 ha tenido diversas
consecuencias en el panorama institucional y en el mediático. Ante una situación de esta …
consecuencias en el panorama institucional y en el mediático. Ante una situación de esta …
'To me, it's ones and zeros, but in reality that one is death': A qualitative study exploring researchers' experience of involving and engaging seldom‐heard communities …
P Teodorowski, SE Rodgers, K Fleming… - Health …, 2023 - Wiley Online Library
Background Big data research requires public support. It has been argued that this can be
achieved by public involvement and engagement to ensure that public views are at the …
achieved by public involvement and engagement to ensure that public views are at the …
Disambiguating the benefits and risks from public health data in the digital economy
S Cheung - Big Data & Society, 2020 - journals.sagepub.com
This article focuses on key roles that the ill-defined concept of 'public benefit'plays in
accessing the public health data held by the UK's National Health Service. Using the …
accessing the public health data held by the UK's National Health Service. Using the …
Towards nationally curated data archives for clinical radiology image analysis at scale: Learnings from national data collection in response to a pandemic
D Cushnan, R Berka, O Bertolli, P Williams… - Digital …, 2021 - journals.sagepub.com
The prevalence of the coronavirus SARS-CoV-2 disease has resulted in the unprecedented
collection of health data to support research. Historically, coordinating the collation of such …
collection of health data to support research. Historically, coordinating the collation of such …
[HTML][HTML] RETRACTED ARTICLE: A topic-based hierarchical publish/subscribe messaging middleware for COVID-19 detection in X-ray image and its metadata
S Eken - Soft Computing, 2023 - Springer
Putting real-time medical data processing applications into practice comes with some
challenges such as scalability and performance. Processing medical images from different …
challenges such as scalability and performance. Processing medical images from different …