Impact of dementia on informal care: a systematic review of family caregivers' perceptions

P Lindeza, M Rodrigues, J Costa… - BMJ supportive & …, 2024 - spcare.bmj.com
Introduction Caregivers play a major role in providing all the support and care in daily
activities for their relatives with dementia. To fully describe the influence of dementia …

Perspectives of people with dementia and carers on advance care planning and end-of-life care: A systematic review and thematic synthesis of qualitative studies

M Sellars, O Chung, L Nolte, A Tong… - Palliative …, 2019 - journals.sagepub.com
Background: Advance care planning aims to ensure that care received during serious and
chronic illness is consistent with the person's values, preferences and goals. However, less …

A qualitative study exploring the difficulties influencing decision making at the end of life for people with dementia

K Lamahewa, R Mathew, S Iliffe, J Wilcock… - Health …, 2018 - Wiley Online Library
Background Dementia is a progressive neurodegenerative condition characterized by
declining functional and cognitive abilities. The quality of end of life care for people with …

[HTML][HTML] The factors that influence care home residents' and families' engagement with decision-making about their care and support: an integrative review of the …

B Lynch, AA Ryan, M O'Neill, S Penney - BMC geriatrics, 2022 - Springer
Background: As care homes play an important role in the lives of an increasing number of
older people, it is pivotal to understand how residents' and their families engage in decision …

Advance care planning in different settings for people with dementia: a systematic review and narrative synthesis

AJ Kelly, T Luckett, JM Clayton, L Gabb… - … & supportive care, 2019 - cambridge.org
BackgroundAdvance care planning (ACP) is identified as being an important process for
people with dementia. However, its efficacy for improving outcomes relevant for the …

Informal carers' support needs when caring for a person with dementia–A scoping literature review

T Holt Clemmensen, H Hein Lauridsen… - … Journal of Caring …, 2021 - Wiley Online Library
Background Informal carers of people with dementia report having unmet needs for support
and few supportive interventions have been shown to be effective. There is a need to …

Caring for a family member or friend with dementia at the end of life: A scoping review and implications for palliative care practice

TR Broady, F Saich, T Hinton - Palliative Medicine, 2018 - journals.sagepub.com
Background: Although people with dementia receive substantial care from informal sources,
there is limited research available that investigates how these carers experience end-of-life …

Substitute decision makers' experiences of making decisions at end of life for older persons with dementia: A systematic review and qualitative meta-synthesis

SJ Cresp, SF Lee, C Moss - Dementia, 2020 - journals.sagepub.com
Background Substitute decision makers are important for people with advanced dementia,
particularly at the end of life. Substitute decision makers report issues in providing support …

The experiences, priorities, and perceptions of informal caregivers of people with dementia in nursing homes: A scoping review

AE Harper, L Terhorst, M Moscirella, RL Turner… - …, 2021 - journals.sagepub.com
Background Person-centered care has been shown to increase desired outcomes for
people with dementia, yet informal caregivers' dissatisfaction with care is often reported. For …

[HTML][HTML] Meaningful connections in dementia end of life care in long term care homes

L McCleary, GN Thompson, L Venturato… - BMC psychiatry, 2018 - Springer
Background Most persons with dementia die in long term care (LTC) homes, where
palliative approaches are appropriate. However, palliative approaches have not been …