Spina bifida

AJ Copp, NS Adzick, LS Chitty, JM Fletcher… - Nature reviews Disease …, 2015 - nature.com
Spina bifida is a birth defect in which the vertebral column is open, often with spinal cord
involvement. The most clinically significant subtype is myelomeningocele (open spina …

Psychosocial and family functioning in spina bifida

GN Holmbeck, KA Devine - Developmental disabilities research …, 2010 - Wiley Online Library
A developmentally oriented bio‐neuropsychosocial model is introduced to explain the
variation in family functioning and psychosocial adjustment in youth and young adults with …

Hospitalizations of adults with spina bifida and congenital spinal cord anomalies

BE Dicianno, R Wilson - Archives of physical medicine and rehabilitation, 2010 - Elsevier
Dicianno BE, Wilson R. Hospitalizations of adults with spina bifida and congenital spinal
cord anomalies. OBJECTIVE: To examine hospital admission records from a large cohort of …

Correlates of depressive and anxiety symptoms in young adults with spina bifida

MH Bellin, TA Zabel, BE Dicianno… - Journal of pediatric …, 2010 - academic.oup.com
Objective Based on social ecological theory, this study was designed to examine the unique
relationships between multi-level ecological factors and psychological symptoms in young …

Surgeries and health outcomes among patients with spina bifida

NB Alabi, J Thibadeau, JS Wiener, MJ Conklin… - …, 2018 - publications.aap.org
METHODS: Using serial cross-sectional data from the National Spina Bifida Patient Registry
(2009–2013; n= 4664), we examined surgical procedures (gastrointestinal, neurologic …

“It's just horrible”: a qualitative study of patients' and carers' experiences of bowel dysfunction in multiple sclerosis

L Dibley, M Coggrave, D McClurg, S Woodward… - Journal of …, 2017 - Springer
Around 50% of people with multiple sclerosis (MS) experience neurogenic bowel
dysfunction (constipation and/or faecal incontinence), reducing quality of life and increasing …

Developmental disabilities across the lifespan

DR Patel, DE Greydanus, JL Calles Jr, HD Pratt - Disease-a-month, 2010 - Elsevier
Developmental disabilities (DD) or neurodevelopmental disabilities (includes intellectual
disability (ID)) are a diverse group of chronic disorders (Table 1) that begin at any time …

Factors associated with mobility outcomes in a National Spina Bifida Patient Registry

BE Dicianno, A Karmarkar, A Houtrow… - American journal of …, 2015 - journals.lww.com
Factors Associated with Mobility Outcomes in a National Spin... : American Journal of Physical
Medicine & Rehabilitation Factors Associated with Mobility Outcomes in a National Spina …

Multidisciplinary management of people with spina bifida across the lifespan

VH Koch, MT Lopes, E Furusawa, K Vaz… - Pediatric Nephrology, 2024 - Springer
The average worldwide prevalence of neural tube defects (NTDs) is 1.0 per 1000 births. Its
development is multifactorial due to genetic and non-genetic factors. Spina bifida (SB) is one …

Adults with spina bifida: a cross‐sectional study of health issues and living conditions

M Bendt, H Gabrielsson, D Riedel… - Brain and …, 2020 - Wiley Online Library
Objective To describe health issues and living conditions in a cohort of adults living with
Spina bifida. Material and methods A cross‐sectional study was conducted by a …