Epilepsy familiarity, knowledge, and perceptions of stigma: report from a survey of adolescents in the general population

JK Austin, PO Shafer, JB Deering - Epilepsy & Behavior, 2002 - Elsevier
The Epilepsy Foundation surveyed general population adolescents concerning epilepsy.
From March to July 2001, a 37-item questionnaire was distributed by 20 Epilepsy …

Parent‐and patient‐validated content for pediatric epilepsy quality‐of‐life assessment

G Arunkumar, E Wyllie, P Kotagal, HT Ong… - Epilepsia, 2000 - Wiley Online Library
Purpose: The purpose of this study was to assess the parent‐and patient‐validated content
of quality‐of‐life measurement for use in children with epilepsy. Methods: We asked the …

Development of scales to measure psychosocial care needs of children with seizures and their parents

J Austin, D Dunn, G Huster, D Rose - Journal of Neuroscience Nursing, 1998 - go.gale.com
Children with seizures and their parents require information and support in addition to
medical care, and assessment scales can help nursing staff determine if psychosocial needs …

The impact of a new pediatric epilepsy diagnosis on parents: Parenting stress and activity patterns

AC Modi - Epilepsy & Behavior, 2009 - Elsevier
The purpose of this study was to compare parenting stress and activity patterns in parents of
children with new-onset epilepsy (NOE, n= 30) and parents of children without epilepsy …

Maternal adaptation to a child's epilepsy

CP Shore, JK Austin, DW Dunn - Epilepsy & Behavior, 2004 - Elsevier
Mothers of children with epilepsy are at risk for problems in adapting to their child's
condition; however, factors associated with maternal adaptation to a child's epilepsy have …

A feasibility study of a family seizure management program:'Be Seizure Smart'

JK Austin, AM McNelis, CP Shore… - Journal of …, 2002 - journals.lww.com
A feasibility study of a psychoeducational family intervention,“Be Seizure Smart,” aimed at
improving attitudes and increasing family functioning was conducted. The intervention was …

Continuing psychosocial care needs in children with new-onset epilepsy and their parents

CP Shore, JM Buelow, JK Austin… - Journal of Neuroscience …, 2009 - journals.lww.com
Children with new-onset epilepsy and their parents have many psychosocial care needs,
including concerns and fears and needs for information and support. No prospective studies …

Psychosocial care needs of parents of children with new-onset seizures

C Shore, J Austin, B Musick, D Dunn… - Journal of …, 1998 - go.gale.com
Parents of children with seizures should be evaluated for unmet psychosocial needs at
every health care visit for six months after the first seizure. Researchers used the Parent …

Development of the parent response to child illness (PRCI) scale

JK Austin, CP Shore, DW Dunn, CS Johnson… - Epilepsy & Behavior, 2008 - Elsevier
The aims of this study were to develop an instrument to measure parents' responses and
perceptions related to the onset of either seizures or asthma in a child (aged 4–14) and to …

[图书][B] Risk and nursing practice

P Godin - 2017 - books.google.com
Risk and Nursing Practice introduces the reader to a range of sociological theory that has
arisen about the'risk society'. Theories about risk and society are specifically related to …