Patients' and public views and attitudes towards the sharing of health data for research: a narrative review of the empirical evidence
Introduction International sharing of health data opens the door to the study of the so-called
'Big Data', which holds great promise for improving patient-centred care. Failure of recent …
'Big Data', which holds great promise for improving patient-centred care. Failure of recent …
Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies
Background The past 10 years have witnessed a significant growth in sharing of health data
for secondary uses. Alongside this there has been growing interest in the public …
for secondary uses. Alongside this there has been growing interest in the public …
The relationship between trust in AI and trustworthy machine learning technologies
To design and develop AI-based systems that users and the larger public can justifiably
trust, one needs to understand how machine learning technologies impact trust. To guide …
trust, one needs to understand how machine learning technologies impact trust. To guide …
More than a method: trusting relationships, productive tensions, and two-way learning as mechanisms of authentic co-production
SE Knowles, D Allen, A Donnelly, J Flynn… - Research Involvement …, 2021 - Springer
Background Knowledge mobilisation requires the effective elicitation and blending of
different types of knowledge or ways of knowing, to produce hybrid knowledge outputs that …
different types of knowledge or ways of knowing, to produce hybrid knowledge outputs that …
“Giving something back”: a systematic review and ethical enquiry into public views on the use of patient data for research in the United Kingdom and the Republic of …
Background: Use of patients' medical data for secondary purposes such as health research,
audit, and service planning is well established in the UK. However, the governance …
audit, and service planning is well established in the UK. However, the governance …
The ethical challenges of artificial intelligence‐driven digital pathology
F McKay, BJ Williams, G Prestwich… - The journal of …, 2022 - Wiley Online Library
Digital pathology–the digitalisation of clinical histopathology services through the scanning
and storage of pathology slides–has opened up new possibilities for health care in recent …
and storage of pathology slides–has opened up new possibilities for health care in recent …
Using interpersonal communication strategies to encourage science conversations on social media
C Martin, BH MacDonald - PLoS One, 2020 - journals.plos.org
Today, many science communicators are using social media to share scientific information
with citizens, but, as research has shown, fostering conversational exchanges remains a …
with citizens, but, as research has shown, fostering conversational exchanges remains a …
The social licence for data-intensive health research: towards co-creation, public value and trust
Abstract Background The rise of Big Data-driven health research challenges the assumed
contribution of medical research to the public good, raising questions about whether the …
contribution of medical research to the public good, raising questions about whether the …
Experts and evidence in deliberation: Scrutinising the role of witnesses and evidence in mini-publics, a case study
Experts hold a prominent position in guiding and shaping policy-making; however, the
nature of expert input to decision-making is a topic of public debate. A key aspect of …
nature of expert input to decision-making is a topic of public debate. A key aspect of …
[HTML][HTML] In pursuit of socially-minded data-intensive innovation in banking: A focus group study of public expectations of digital innovation in banking
While the field of data ethics is increasingly engaging with the complex socio-technical
nature of data practices and their impacts, in the private sector, data ethics continues to be …
nature of data practices and their impacts, in the private sector, data ethics continues to be …