Background/objective Recessive dystrophic epidermolysis bullosa (RDEB) is a genetic
collagen disorder characterized by skin fragility leading to blistering, wounds, and scarring …

The creation of the Dermatology Life Quality Index (DLQI) questionnaire facilitated many
studies on the impact of skin diseases on patients' quality of life (QoL). Many national and …

Knowledge on hidradenitis suppurativa/acne inversa (HS) is rapidly increasing. HS has a
profound impact on patients and their family life. Several factors, such as comorbidities …

Abstract The European Academy of Dermatology and Venereology (EADV) Task Forces
(TFs) on Quality of Life (QoL) and Patient‐Oriented Outcomes and Acne, Rosacea and …

Purpose Individuals with epidermolysis bullosa (EB) present with various clinical
manifestations of different severities that affect quality of life (QoL). This systematic review …

The pharmaceutical approach to skin disease has been hugely successful, but despite
effective drugs being available and used, there are still vast numbers of people who …

Background There are few studies on bullying in skin diseases. Persons with skin diseases
are especially prone to bullying. Objectives This component of the project 'Bullying among …

Abstract Members of the European Academy of Dermatology and Venereology (EADV) Task
Force on Quality of Life (QoL) and Patient Oriented Outcomes reviewed the instruments …

Core outcome sets (COSs) are an agreed standardized collection of outcomes that should
be measured and reported in all clinical trials for a specific clinical condition. Tsekhe aim of …

Abstract Background The Infants and Toddlers Dermatology Quality of Life (InToDermQoL)
is the dermatology-specific proxy health-related quality of life (HRQoL) instrument for …