Experiences and perspectives of adults living with systemic lupus erythematosus: thematic synthesis of qualitative studies

B Sutanto, D Singh‐Grewal, HP McNeil… - Arthritis care & …, 2013 - Wiley Online Library
Objective Systemic lupus erythematosus (SLE) is a chronic inflammatory autoimmune
disease that significantly impairs patients' quality of life and can be life threatening. This …

Consequences of a diagnostic label: a systematic scoping review and thematic framework

R Sims, ZA Michaleff, P Glasziou… - Frontiers in Public …, 2021 - frontiersin.org
Objectives: To develop a thematic framework for the range of consequences arising from a
diagnostic label from an individual, family/caregiver, healthcare professional, and …

Association of the lupus low disease activity state (LLDAS) with health-related quality of life in a multinational prospective study

V Golder, R Kandane-Rathnayake, AYB Hoi… - Arthritis research & …, 2017 - Springer
Background Systemic lupus erythematosus (SLE) is associated with significant impairment
of health-related quality of life (HR-QoL). Recently, meeting a definition of a lupus low …

Systemic lupus erythematosus: primary care approach to diagnosis and management

NCV Lam, MV Ghetu, ML Bieniek - American family physician, 2016 - aafp.org
Systemic lupus erythematosus is an autoimmune disease that affects many systems,
including the skin, musculoskeletal, renal, neuropsychiatric, hematologic, cardiovascular …

Is it me? The impact of patient–physician interactions on lupus patients' psychological well-being, cognition and health-care-seeking behaviour

M Sloan, F Naughton, R Harwood… - … Advances in Practice, 2020 - academic.oup.com
Objective The aim was to explore the impact of patient–physician interactions, pre-and post-
diagnosis, on lupus and UCTD patients' psychological well-being, cognition and health-care …

Unmet needs of patients with systemic lupus erythematosus

S Danoff-Burg, F Friedberg - Behavioral Medicine, 2009 - Taylor & Francis
The authors' goal was to assess unmet needs of patients with systemic lupus erythematosus
(SLE). Participants (N= 112), who were recruited through the mailing list and support group …

Qualitative methodologies II: a brief guide to applying interpretative phenomenological analysis in musculoskeletal care

ED Hale, GJ Treharne, GD Kitas - Musculoskeletal Care, 2008 - Wiley Online Library
In this paper, we conclude our two‐part series discussing how readers of Musculoskeletal
Care might employ qualitative methods. In the first paper of the series, we focused upon …

Impact of systemic lupus erythematosus on health, family, and work: the patient perspective

D Robinson Jr, D Aguilar… - Arthritis Care & …, 2010 - Wiley Online Library
Objective Qualitative research among patients with systemic lupus erythematosus (SLE) can
identify aspects of the disease relevant to clinical research and practice. A …

Qualitative methodologies I: Asking research questions with reflexive insight

ED Hale, GJ Treharne, GD Kitas - Musculoskeletal Care, 2007 - Wiley Online Library
The purpose of this paper, the first of a series of two discussion pieces, is to introduce some
of the issues in the debate surrounding qualitative research to the readers of …

A qualitative exploration of carers' and 'patients' experiences of fibromyalgia: one illness, different perspectives

K Rodham, N Rance, D Blake - Musculoskeletal care, 2010 - Wiley Online Library
Objectives: Previous research has largely focused on the lived experience either of those
who have fibromyalgia syndrome (FMS) or their spousal carers. This study aimed to explore …