[HTML][HTML] Management of neurogenic bladder dysfunction in children update and recommendations on medical treatment

C Sager, U Barroso Jr, MB Netto, G Retamal… - International braz j …, 2022 - SciELO Brasil
Introduction: Defective closure of the neural tube affects different systems and generates
sequelae, such as neurogenic bladder (NB). Myelomeningocele (MMC) represents the most …

[HTML][HTML] A user-centered approach: understanding client and caregiver needs and preferences in the development of mHealth apps for self-management

RM Bendixen, AD Fairman, M Karavolis… - JMIR mHealth and …, 2017 - mhealth.jmir.org
Background: Many adolescents and young adults with chronic illness or disability often fail
to develop the self-management skills necessary to independently handle medical and self …

Transition programs for adolescents and young adults with spina bifida: A mixed‐methods systematic review

EK Choi, E Bae, M Jang - Journal of Advanced Nursing, 2021 - Wiley Online Library
Aims To identify the components of transition programs for the successful transition of
adolescents and young adults with spina bifida and to synthesize the literature findings on …

Care coordination guidelines for the care of people with spina bifida

A Van Speybroeck, P Beierwaltes… - Journal of Pediatric …, 2020 - content.iospress.com
Care coordination is the deliberate organization of patient care activities between two or
more participants (including the patient) involved in a person's care to facilitate the …

Clinical profile of Korean children with spina bifida: a single-center prospective cohort study

H Yun, SH Yang, H Lee, SW Kim, YS Lee, Y Ji, J Park… - BMC pediatrics, 2024 - Springer
Spina bifida (SB) is a chronic condition requiring lifelong self-management, underscoring
the need to establish a dedicated cohort for longitudinal monitoring of health outcomes. The …

Crafting a 'TransitionOmeter': A Proposed Framework for Developing and Honing Capabilities of Young People Transitioning to Adult Healthcare Services.

S Levy, AHD Wynd, A Motee - Comprehensive Child and …, 2024 - Taylor & Francis
This paper focuses on an innovative approach to preparing children and young people, with
Spina Bifida, to move from child-centered to adult-oriented healthcare systems. Reflecting …

School-Based Occupational Therapists' Roles Supporting Transitions Into and Throughout Kindergarten to Grade 12: A Scoping Review

K Renahan, E Knobl, A Jiang, C Tandon… - The American Journal …, 2024 - research.aota.org
Importance: Large educational transitions occur when students enter and exit school or
move between grades or divisions within the kindergarten to Grade 12 (K–12) school …

Sacral Spina Bifida Occulta: A Frequency Analysis of Secular Change

ER Kelty, M Henneberg - 2022 - ceeol.com
Substantial relaxation of natural selection beginning around 1900 changed the
mutation/selection balance of modern genetic material, producing an increase in variable …

[PDF][PDF] Vejiga Neurogénica Pediátrica. Actualización del abordaje clínico.

C Sager, E Ormaechea - 2020 - siupurologia.com
Como objetivo general se ha establecido: Adaptar “Recomendaciones para el abordaje de
Vejiga Neurogénica (VN) Pediátrica y actualizar los principales subtemas” de Guías …

Efeitos de um programa de educação para a autogestão em jovens com spina bífida: desafios para a enfermagem

MI Costa Malheiro - 2015 - repositorio.ul.pt
Os desafios relacionados com o desenvolvimento de qualquer jovem adolescente são
baseados na procura da identidade e da independência dos pais. Quando se trata de …