Reimagining family involvement in residential long-term care

JE Gaugler, LL Mitchell - Journal of the American Medical Directors …, 2022 - Elsevier
Although descriptions of family involvement in residential long-term care (RLTC) are
available in the scientific literature, how family involvement is optimized in nursing homes or …

Experiences of informal caregivers supporting individuals with upper gastrointestinal cancers: a systematic review

M Furtado, D Davis, JM Groarke… - BMC Health Services …, 2024 - Springer
Abstract Background Upper gastrointestinal cancers (UGICs) are increasingly prevalent.
With a poor prognosis and significant longer-term effects, UGICs present significant …

A qualitative systematic review of factors affecting caregivers' decision-making for care setting placements for individuals with dementia

M Couture, F Ducharme, M Sasseville, C Bradette… - Geriatric Nursing, 2020 - Elsevier
Aims To synthesize factors that facilitates or hinders the choice of a new living environment
for a person with dementia by the informal caregiver. Background In an effort to develop …

Forced treatment and care in home-dwelling persons with dementia

Å Gjellestad, T Oksholm, F Bruvik - Nursing ethics, 2021 - journals.sagepub.com
Background: The use of forced treatment and care of home-dwelling persons with dementia
is a universally important topic. These patients are completely dependent on care from …

Tailored videoconferencing counselling program to support family carers of people living with dementia during the transition to permanent residential care: a pilot and …

D Brooks, K Wyles, NA Pachana, E Beattie, JE Gaugler - BMC geriatrics, 2024 - Springer
Background Decisions surrounding the permanent residential care placement of people
living with dementia can be stressful and distressing; however, providing access to targeted …

Feelings of Empowerment Scale for Family Caregivers: Development, Exploratory, and Confirmative Analysis

S Schneider, TN Livingston, L Elliott… - Clinical …, 2024 - Taylor & Francis
Objectives This study aimed to validate a measure of feelings of empowerment among
family caregivers of persons with life limiting illnesses. Methods Family caregivers (N= 295) …

Non-use of community health-care services–an exploratory cross-sectional study among family care-givers for older, home-dwelling persons with dementia

JM Moholt, O Friborg, N Henriksen, T Hamran… - Ageing & …, 2021 - cambridge.org
Community health-care services for older, home-dwelling persons with dementia tend to be
underutilised. Family care-givers provide substantial care, and they often arrange for and co …

Being sheltered from a demanding everyday life: experiences of the next of kin to people with dementia attending farm-based daycare

LB Taranrød, I Pedersen, Ø Kirkevold… - International Journal of …, 2021 - Taylor & Francis
Purpose Farm-based daycare (FDC) is a type of daycare service for people with dementia.
The aim of the present study was to explore the next of kin's experiences with FDC and how …

Perceptions of family caregivers of home-dwelling persons with dementia regarding access to information and involvement in decisions

N Henriksen, JM Moholt, BH Blix - Journal of Aging & Social Policy, 2020 - Taylor & Francis
This cross-sectional study explored factors affecting information about available health
services, content of services provided, and involvement in decisions regarding services as …

Chart based data as a resource for tracking and improving a person‐centred palliative approach in long‐term care

T Sussman, J Lawrence, A Earn… - Journal of Clinical …, 2023 - Wiley Online Library
Abstract Aims and Objectives To enhance the practice of a person‐centred palliative
approach in long‐term care. Background Implementing a person‐centred palliative …