Total uncertainty: a systematic review and thematic synthesis of experiences of uncertainty in older people with advanced multimorbidity, their informal carers and …

SN Etkind, J Li, J Louca, SA Hopkins, I Kuhn… - Age and …, 2022 - academic.oup.com
Objectives uncertainty pervades the complex illness trajectories experienced by older adults
with multimorbidity. Uncertainty is experienced by older people, their informal carers and …

The empirical evidence underpinning the concept and practice of person-centred care for serious illness: a systematic review

A Giusti, K Nkhoma, R Petrus, I Petersen, L Gwyther… - BMJ global …, 2020 - gh.bmj.com
Introduction Person-centred care has become internationally recognised as a critical
attribute of high-quality healthcare. However, the concept has been criticised for being …

Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: an analysis of the UK CovPall survey data from specialist palliative …

A Bradshaw, L Dunleavy, C Walshe… - Palliative …, 2021 - journals.sagepub.com
Background: Specialist palliative care services play an important role in conducting advance
care planning during COVID-19. Little is known about the challenges to advance care …

Reassessing advance care planning in the light of covid-19

SA Hopkins, R Lovick, L Polak, B Bowers, T Morgan… - Bmj, 2020 - bmj.com
Compared with younger people, older people and those with frailty are more likely to die
from acute infections, such as covid-19, and less likely to survive intensive care. 1 2 This has …

The importance of living well now and relationships: a qualitative study of the barriers and enablers to engaging frail elders with advance care planning

S Combes, K Gillett, C Norton… - Palliative …, 2021 - journals.sagepub.com
Background: The population of frail elders is growing, and due to their vulnerability to
sudden deterioration, advance care planning is particularly important. However, advance …

The work of older people and their informal caregivers in managing an acute health event in a hospital at home or hospital inpatient setting

P Mäkelä, D Stott, M Godfrey, G Ellis, R Schiff… - Age and …, 2020 - academic.oup.com
Background There is limited understanding of the contribution made by older people and
their caregivers to acute healthcare in the home and how this compares to hospital inpatient …

In the borderland of the body: How home‐dwelling older people experience frailty

BE Søvde, AM Sandvoll, E Natvik… - Scandinavian journal of …, 2022 - Wiley Online Library
Rationale The increasing number of frail home‐dwelling older people has sharpened the
focus on discovering and implementing suitable treatment and care in clinical practice …

The stability of care preferences following acute illness: a mixed methods prospective cohort study of frail older people

SN Etkind, N Lovell, AE Bone, P Guo, C Nicholson… - BMC geriatrics, 2020 - Springer
Background Patient preferences are integral to person-centred care, but preference stability
is poorly understood in older people, who may experience fluctuant illness trajectories with …

[HTML][HTML] Problematising carer identification: A narrative study with older partner's providing end-of-life care

T Morgan, R Duschinsky, M Gott, S Barclay - SSM-Qualitative Research in …, 2021 - Elsevier
Internationally health and social care policies have increasingly promoted carer
selfidentification as the best way to target and support people in caring roles. There has …

Uncertainty and advance care planning in older adults living with frailty. A collection and commentary on theme of advanced care planning

P Collins, S Hopkins, H Milbourn, SN Etkind - Age and Ageing, 2024 - academic.oup.com
• Commentary to accompany the themed collection: Advance care planning in older adults
with frailty.• People living with frailty face an inherently uncertain future.• Advance care …