Background Caring for children with chronic and complex medical needs places
extraordinary stress on parents and other family members. A scoping review was …

OBJECTIVE: To review the instruments used to assess the impact of PPC interventions.
DATA SOURCES: Five databases (Embase, Scopus, The Cochrane Library, PsychInfo …

Purpose Parents of children with special healthcare needs may become overwhelmed with
the ongoing caregiving needs of their children. Caring for a child with special healthcare …

Background Participating in everyday life is essential to the healthy development and
emotional well‐being of children. However, little is known about siblings of children with …

Background Children with life-limiting conditions often have complex needs, making it
challenging for services to provide satisfactory care. Few studies consider whether services …

Der Beitrag führt die spezifischen pflegerischen Versorgungsbedarfe (schwerst-)
pflegebedürftiger Kinder exemplarisch aus, beschreibt typische familiale …

ObjectiveQualitative research is pivotal in gaining understanding of individuals' experiences
in pediatric palliative care. In the past few decades, the number of qualitative studies on …

Children with complex care needs form a diverse population with a variety of health and
social care requisites in the presence of a range of complex symptoms and diagnoses. An …

In the last decade, the number of children and youth with special health care needs
(CYSHCN) is increased as a result of the improvement of neonatal and pediatric assistance …

Objective To assess the involvement of volunteers with direct patient/family contact in UK
palliative care services for children and young people. Method Cross-sectional survey using …