Data science and its relationship to library and information science: a content analysis

S Virkus, E Garoufallou - Data Technologies and Applications, 2020 - emerald.com
Purpose The purpose of this paper is to present the results of a study exploring the emerging
field of data science from the library and information science (LIS) perspective …

[HTML][HTML] Patients' and Members of the Public's Wishes Regarding Transparency in the Context of Secondary Use of Health Data: Scoping Review

A Cumyn, JF Ménard, A Barton, R Dault… - Journal of Medical …, 2023 - jmir.org
Background: Secondary use of health data has reached unequaled potential to improve
health systems governance, knowledge, and clinical care. Transparency regarding this …

Fifty shades of grey: in praise of a nuanced approach towards trustworthy design

L Thornton, B Knowles, G Blair - … of the 2021 ACM Conference on …, 2021 - dl.acm.org
Environmental data science is uniquely placed to respond to essentially complex and
fantastically worthy challenges related to arresting planetary destruction. Trust is needed for …

Open government data: critical information management perspectives

E Shepherd, J Bunn, A Flinn, E Lomas… - Records Management …, 2019 - emerald.com
Purpose Open government data and access to public sector information is commonplace,
yet little attention has focussed on the essential roles and responsibilities in practice of the …

Towards a human-centred participatory approach to child social care recordkeeping

E Shepherd, V Hoyle, E Lomas, A Flinn, A Sexton - Archival Science, 2020 - Springer
Abstract In 2019, there were over 75,000 children and young people in out-of-home care in
England and Wales. Recent estimates suggest that up to half a million British people were in …

The alchemy of trust: The creative act of designing trustworthy socio-technical systems

L Thornton, B Knowles, G Blair - … of the 2022 ACM Conference on …, 2022 - dl.acm.org
Trust is recognised as a significant and valuable component of socio-technical systems,
facilitating numerous important benefits. Many trust models have been created throughout …

Resisting big data exploitations in public healthcare: free riding or distributive justice?

P Vezyridis, S Timmons - Sociology of health & illness, 2019 - Wiley Online Library
We draw on findings from qualitative interviews with health data researchers, GP s and
citizens who opted out from NHS England's care. data programme to explore controversies …

The knowledge and reuse practices of researchers utilising government health information assets, Victoria, Australia, 2008–2020

M Riley, K Robinson, MF Kilkenny, SG Leggat - Plos one, 2024 - journals.plos.org
Background Using government health datasets for secondary purposes is widespread;
however, little is known on researchers' knowledge and reuse practices within Australia …

The role and nature of consent in government administrative data

A Sexton, E Shepherd, O Duke-Williams… - Big Data & …, 2018 - journals.sagepub.com
This article draws on research undertaken by the authors as part of the Administrative Data
Research Centre in England (ADRC-E). Between 2014 and 2017, we conducted four case …

The challenges and opportunities of mental health data sharing in the UK

T Ford, KL Mansfield, S Markham… - The Lancet Digital …, 2021 - thelancet.com
The UK's National Health Service (NHS) generates uniquely rich data that should be rapidly
deployed for policy and service improvement, yet researchers report difficulties in accessing …