Ethics review of big data research: What should stay and what should be reformed?

A Ferretti, M Ienca, M Sheehan, A Blasimme… - BMC medical …, 2021 - Springer
Background Ethics review is the process of assessing the ethics of research involving
humans. The Ethics Review Committee (ERC) is the key oversight mechanism designated to …

Precision health: the role of the social and behavioral sciences in advancing the vision

E Hekler, JA Tiro, CM Hunter… - Annals of Behavioral …, 2020 - academic.oup.com
Abstract Background In 2015, Collins and Varmus articulated a vision for precision medicine
emphasizing molecular characterization of illness to identify actionable biomarkers to …

Jessie: Synthesizing social robot behaviors for personalized neurorehabilitation and beyond

A Kubota, EIC Peterson, V Rajendren… - Proceedings of the …, 2020 - dl.acm.org
JESSIE is a robotic system that enables novice programmers to program social robots by
expressing high-level specifications. We employ control synthesis with a tangible front-end …

Ethical issues with using Internet of Things devices in citizen science research: a scoping review

J Scheibner, A Jobin, E Vayena - Frontiers in Environmental Science, 2021 - frontiersin.org
Digital innovation is ever more present and increasingly integrated into citizen science
research. However, smartphones and other connected devices come with specific features …

Ethical, legal, and social implications of digital health: A needs assessment from the Society of Behavioral Medicine to inform capacity building for behavioral scientists

SP Goldstein, C Nebeker, RB Ellis… - Translational Behavioral …, 2024 - academic.oup.com
The ethical, legal, and social implications (ELSIs) of digital health are important when
researchers and practitioners are using technology to collect, process, or store personal …

[HTML][HTML] Lessons learned: beta-testing the digital health checklist for researchers prompts a call to action by behavioral scientists

R Bartlett Ellis, J Wright, LS Miller… - Journal of medical …, 2021 - jmir.org
Digital technologies offer unique opportunities for health research. For example, Twitter
posts can support public health surveillance to identify outbreaks (eg, influenza and COVID …

From return of information to return of value: Ethical considerations when sharing individual-level research data

C Nebeker, AD Leow, RC Moore - Journal of Alzheimer's …, 2019 - content.iospress.com
The implementation of digital health technologies into research studies for Alzheimer's
disease and other clinical populations is on the rise. Digital tools and strategies create …

“Data is the new oil”: citizen science and informed consent in an era of researchers handling of an economically valuable resource

E Quigley, I Holme, DM Doyle, AK Ho… - Life Sciences, Society …, 2021 - Springer
As with other areas of the social world, academic research in the contemporary healthcare
setting has undergone adaptation and change. For example, research methods are …

Citizen Science and Social Innovation: Mutual Relations, Barriers, Needs, and Development Factors

A Klimczuk, E Butkeviciene, M Kerla - Frontiers in Sociology, 2022 - frontiersin.org
CONCLUSION In this Research Topic, the editors wanted to open theoretical as well as
empirically-based discussion, including examples, practices, and case studies of at least …

Educational Learning Improvement Design: Methods Teachers Who Teach English Use to Engage Students to Learn in Middle School

EE Charlot - 2023 - search.proquest.com
Educational learning improvement is an important stage of a student's informative
experience and is essential for teachers to provide their students with strategies that …