Establishing patient partners' roles on research teams: a scoping review

G Tobiano, BM Gillespie, J Carlini, R Muir… - Research Involvement …, 2024 - Springer
Background There are a myriad of ways patient partners can enact their roles on research
teams. International guidelines emphasize the need for a collaborative approach to …

Cerebral palsy registers around the world: A survey

S Goldsmith, H Smithers‐Sheedy… - … Medicine & Child …, 2024 - Wiley Online Library
Aim To provide a description of cerebral palsy (CP) registers globally, identify which aim to
report on CP epidemiology, and report similarities and differences across topics of …

Participating together in CP-ACHIEVE: Experiences, opportunities and reflections from a collaborative research team of people with lived experience of cerebral palsy …

G Kilgour, A Lu, N Kozelj, J Tracy, L Hickey… - …, 2024 - journals.sagepub.com
The Australian Centre for Health, Independence, Economic participation and Value
Enhanced care for adolescents and young adults with Cerebral Palsy (CP-ACHIEVE) is a …

Examining tools for assessing the impact of chronic pain on emotional functioning in children and young people with cerebral palsy: stakeholder preference and …

MG Smith, RJ Gibson, RN Russo, S Karanicolas… - Quality of Life …, 2024 - Springer
Purpose To firstly identify tools for assessing the impact of chronic pain on emotional
functioning in children and young people with cerebral palsy (CP), and secondly identify …