Aim: This summary from the American Heart Association provides guidance for the provision
of primary and subspecialty palliative care in pediatric congenital and acquired heart …

The Fontan circulation describes the circulatory state resulting from an operation in
congenital heart disease where systemic venous return is directed to the lungs without an …

Context Although access to subspecialty pediatric palliative care (PPC) is increasing, little is
known about the role of PPC for children with advanced heart disease (AHD). Objectives …

Background: Palliative care (PC) in the neonatal intensive care unit (NICU) is often provided
exclusively to infants expected to die. Standards of care support providing PC early after …

Objective To test our hypothesis that an innovative method of early palliative care called
“Baby, Attachment, Comfort Interventions” reduces psychological distress in parents of …

Background: Parents who receive a diagnosis of a severe, life-threatening CHD for their
foetus or neonate face a complex and stressful decision between termination, palliative care …

Background Regional studies show that children with cancer receive medically intense end‐
of‐life (EOL) care, but EOL care patterns, including palliative care utilization in Alabama …

Congenital heart disease is one of the most common causes of death derived from
malformations. Historically, its treatment has depended on timely diagnosis and early …

Although outcomes for children with heart disease have improved substantially over the past
several decades, heart disease remains one of the leading causes of paediatric mortality …

Objective To explore perspectives of paediatric cardiac and palliative care professionals on
providing palliative care to children with complex cardiac conditions. Design A national …