Advances in managing transition to adulthood for adolescents with congenital heart disease: a practical approach to transition program design: a scientific statement …

AS John, JL Jackson, P Moons, K Uzark… - Journal of the …, 2022 - Am Heart Assoc
It is now expected that most individuals with congenital heart disease will survive to
adulthood, including those with complex heart conditions. Maintaining lifelong medical care …

A systematic review of adolescents' sense of coherence and health

H Länsimies, AM Pietilä… - … Journal of Caring …, 2017 - Wiley Online Library
The aim of this systematic review was to describe the association between adolescent sense
of coherence (SOC) and health and identify the future direction for research in this area …

[PDF][PDF] Salutogenesis: Sense of coherence in adolescence

O Braun-Lewensohn, O Idan, B Lindström… - The handbook of …, 2017 - library.oapen.org
The adolescent, at the very best, can only have gained a tentative strong SOC, which may
be useful for a short-range prediction about coping with stressors and health status …

Sense of coherence and perceived physical health explain the better quality of life in adolescents with congenital heart disease

S Apers, P Moons, E Goossens… - European Journal …, 2013 - journals.sagepub.com
Background: Since survival rates of patients with congenital heart disease (CHD) have
improved, issues beyond the quantity of life have become more important. Quality of life …

Determinants of quality of life in children and adolescents with CHD: a systematic review

M Drakouli, K Petsios, M Giannakopoulou… - Cardiology in the …, 2015 - cambridge.org
PurposeThis review aims to outline a systematic approach for the assessment of quality of
life in children and adolescents with CHD and to cite its main determinants. MethodsA …

Person-centred transition programme to empower adolescents with congenital heart disease in the transition to adulthood: a study protocol for a hybrid randomised …

MA Mora, C Sparud-Lundin, EL Bratt, P Moons - BMJ open, 2017 - bmjopen.bmj.com
Introduction When a young person grows up, they evolve from an independent child to an
empowered adult. If an individual has a chronic condition, this additional burden may …

Quality of life and congenital heart disease in childhood and adolescenc

J Bertoletti, GC Marx, SP Hattge Junior… - Arquivos brasileiros de …, 2013 - SciELO Brasil
Advances in cardiac surgery techniques and early diagnosis have enabled the increased
survival of individuals with congenital heart disease. The investigation of the quality of life in …

Sense of coherence is a predictor of perceived health in adolescents with congenital heart disease: A cross-lagged prospective study

S Apers, K Luyckx, J Rassart, E Goossens… - International Journal of …, 2013 - Elsevier
BACKGROUND: The life expectancy of patients with congenital heart disease (CHD) has
increased substantially. Health care should meet their needs through enhancing …

Quality‐of‐life research in adult patients with congenital heart disease: current status and the way forward

P Moons, K Luyckx - Acta Paediatrica, 2019 - Wiley Online Library
Over the past four decades, the number of papers on quality of life (QoL) in congenital heart
disease (CHD) has grown exponentially. However, firm conclusions have been hard to …

Parenting behaviors and the well-being of children with a chronic physical condition.

JL Crandell, M Sandelowski, J Leeman… - Families, systems, & …, 2018 - psycnet.apa.org
Introduction: Numerous studies have identified the importance of parenting behaviors to the
well-being of children with chronic physical conditions. Synthesizing the findings of these …