What does it mean to personalise cancer medicine? Personalised cancer medicine explores
this question by foregrounding the experiences of patients, carers and practitioners in the …

'Personalized medicine'might sound like the very antithesis of population science and public
health, with the individual taking the place of the population. However, in practice …

The Nordic countries aim to have a unique place within the European and global health data
economy. They have extensive nationally maintained and centralized health data records …

Why healthcare cannot—and should not—become data-driven, despite the many promises
of intensified data sourcing. In contemporary healthcare, everybody seems to want more …

Politically authorized reports on personalized and precision medicine stress an urgent need
for finer-grained disease categories and faster taxonomic revision, through integration of …

Since the sequencing of the human genome, as well as the completion of the first Human
Genome Diversity Project, the benefits of studying one human population over another has …

Health data can contain sensitive information. People who consult a doctor seek help on
issues that matter to them: they typically expect some form of confidentiality. However, the …

According to surveys and opinion polls, citizens in Nordic welfare societies have positive,
supportive attitudes towards medical research and biobanking. In Finland, it was expected …

Freezers with biospecimen deposits became biobanks and later were networked at the pan-
European level in 2013 under the Biobanking and BioMolecular Resources Research …

Moreau (2019) has raised concerns about the use of DNA data obtained from vulnerable
populations, such as the Uighurs in China. We discuss another case, situated in Europe and …