The impact of patient and public involvement in health research versus healthcare: a scoping review of reviews
Many policies promote patient and public involvement (PPI) in health research and
healthcare provision. However, research points to uncertainties about its impact. The aim of …
healthcare provision. However, research points to uncertainties about its impact. The aim of …
[HTML][HTML] Valuing the diversity of research methods to advance nutrition science
ABSTRACT The ASN Board of Directors appointed the Nutrition Research Task Force to
develop a report on scientific methods used in nutrition science to advance discovery …
develop a report on scientific methods used in nutrition science to advance discovery …
Confronting racism in all forms of pain research: a shared commitment for engagement, diversity, and dissemination
This third paper in the “Confronting Racism in All Forms of Pain Research” series discusses
adopting an antiracism framework across all pain research disciplines and highlights the …
adopting an antiracism framework across all pain research disciplines and highlights the …
Extending an antiracism lens to the implementation of precision public health interventions
Precision public health holds promise to improve disease prevention and health promotion
strategies, allowing the right intervention to be delivered to the right population at the right …
strategies, allowing the right intervention to be delivered to the right population at the right …
Lost in reviews: looking for the involvement of stakeholders, patients, public and other non‐researcher contributors in realist reviews
The involvement of non‐researcher contributors (eg, stakeholders, patients and the public,
decision and policy makers, experts, lay contributors) has taken a variety of forms within …
decision and policy makers, experts, lay contributors) has taken a variety of forms within …
How should communities be meaningfully engaged (if at all) when setting priorities for biomedical research? Perspectives from the biomedical research community
J Borthwick, N Evertsz, B Pratt - BMC Medical Ethics, 2023 - Springer
Background There is now rising consensus that community engagement is ethically and
scientifically essential for all types of health research. Yet debate continues about the moral …
scientifically essential for all types of health research. Yet debate continues about the moral …
Applying patient and public involvement in preclinical research: a co‐created scoping review
Abstract Background Patient and Public Involvement (PPI) in research aims to improve the
quality, relevance and appropriateness of research. PPI has an established role in clinical …
quality, relevance and appropriateness of research. PPI has an established role in clinical …
How does the genomic naive public perceive whole genomic testing for health purposes? A scoping review
IA Sherburn, K Finlay, S Best - European Journal of Human Genetics, 2023 - nature.com
The benefits of genomic testing are primarily reported in rare disease, cancer diagnosis and
disease management. However, as research into its application in common, more complex …
disease management. However, as research into its application in common, more complex …
[PDF][PDF] Citizen science models in health research: an Australian commentary
This qualitative review explores how established citizen science models can inform and
support meaningful engagement of public in health research in Australia. In particular, with …
support meaningful engagement of public in health research in Australia. In particular, with …
Participatory research emergent recommendations for researchers and academic institutions: a rapid scoping review
In recent years, a range of academic disciplines have emphasized the potential benefits of
prioritizing meaningful engagement with individuals and communities who have lived and …
prioritizing meaningful engagement with individuals and communities who have lived and …