[HTML][HTML] The future of biotechnology crime: A parallel delphi study with non-traditional experts

M Elgabry, D Nesbeth, S Johnson - Futures, 2022 - Elsevier
Background The way science is practiced is changing and forecasting biotechnology crime
trends remains a challenge as future misuses become more sophisticated. Methods A …

Citizen Science in News Media: Boundary Mediation of Public Participation in Health Expertise

EC Mayes - Science, Technology, & Human Values, 2024 - journals.sagepub.com
In this article, I examine how scientific boundary work describes or represents citizen
science as credible forms of expertise. Citizen science is an ambiguous concept, and I …

[HTML][HTML] “A cohort of pirate ships”: biomedical citizen scientists' attitudes toward ethical oversight

M Trejo, I Canfield, WB Brooks… - … Science: Theory and …, 2021 - ncbi.nlm.nih.gov
As biomedical citizen science initiatives become more prevalent, the unique ethical issues
that they raise are attracting policy attention. The ethical oversight of bottom-up biomedical …

Governing with public engagement: an anticipatory approach to human genome editing

D Barlevy, E Juengst, J Kahn, J Moreno… - Science and Public …, 2024 - academic.oup.com
In response to calls for public engagement on human genome editing (HGE), which
intensified after the 2018 He Jiankui scandal that resulted in the implantation of genetically …

Citizen science and scientific authority: Have you checked the boundary work?

EC Mayes - Citizen Science: Theory and Practice, 2022 - research.ed.ac.uk
This article uses the sociological concept of boundary work to evaluate how epistemic
authority is performed in citizen science initiatives. Drawing on two case studies of boundary …

Navigating biosafety concerns within COVID-19 do-it-yourself (DIY) science: An ethnographic and interview study

A Wexler, R Choi, A Pearlman, LM Rasmussen - BioSocieties, 2023 - Springer
Non-establishment or do-it-yourself (DIY) science involves individuals who may not have
formal training conducting experiments outside of institutional settings. While prior …

[HTML][HTML] Community bioethics: provocations for institutionalized ethics from community-based biology

A Murray, D Santos - Citizen …, 2022 - theoryandpractice …
Abstract In the United States, institutions of scientific and medical ethics developed out of
histories that continue to shape their principles and scope of concerns. Many have identified …

[HTML][HTML] Mapping the Landscape of Do-it-Yourself Medicine

A Wexler - Citizen science: theory and practice, 2022 - ncbi.nlm.nih.gov
The practice of medicine is typically conceptualized as remaining within the boundaries of a
hospital or clinic. However, in recent years, patients have been able to gain access to …

[HTML][HTML] Diverse, Emergent, Disruptive: Perspectives on and Developments in Biomedical Citizen Science

CJ Guerrini, J Kempner… - Citizen …, 2022 - theoryandpractice …
Citizen science projects relevant to human health and the biosciences are on the rise.
Initiated, executed, and championed by individuals from diverse disciplinary and …

[HTML][HTML] An Ethics Framework for Evaluating Ownership Practices in Biomedical Citizen Science

CJ Guerrini, AL McGuire - Citizen science: theory and practice, 2022 - ncbi.nlm.nih.gov
The collaborative nature of citizen science raises important questions about managing
ownership of its research outputs. Potential citizen science research outputs include data …