[HTML][HTML] Generative artificial intelligence and ethical considerations in health care: a scoping review and ethics checklist

Y Ning, S Teixayavong, Y Shang… - The Lancet Digital …, 2024 - thelancet.com
The widespread use of Chat Generative Pre-trained Transformer (known as ChatGPT) and
other emerging technology that is powered by generative artificial intelligence (GenAI) has …

Time to reflect on open-label placebos and their value for clinical practice

CMP Jones, CWC Lin, C Blease, J Lawson… - Pain, 2023 - journals.lww.com
Basic science has found limited evidence from small studies of genuine positive effects on
health and wellbeing outcomes, caused by positive treatment expectations, known as …

Patients, clinicians and open notes: information blocking as a case of epistemic injustice

C Blease, L Salmi, H Rexhepi, M Hägglund… - Journal of Medical …, 2022 - jme.bmj.com
In many countries, including patients are legally entitled to request copies of their clinical
notes. However, this process remains time-consuming and burdensome, and it remains …

Sharing online clinical notes with patients: implications for nocebo effects and health equity

C Blease - Journal of Medical ethics, 2023 - jme.bmj.com
Patients in around 20 countries worldwide are now offered online access to at least some of
their medical records. Access includes test results, medication lists, referral information …

Including people with Parkinson's disease in clinical study design and execution: A call to action

MJ Meinders, AC Donnelly… - Journal of Parkinson's …, 2022 - content.iospress.com
The proactive inclusion of patients in the design and execution of clinical studies has been
an emerging focus for decades. Such participatory research helps to design studies better …

Matching researchers' needs and patients' contributions: practical tips for meaningful patient engagement from the field of rheumatology

CG Schoemaker, DP Richards, M De Wit - Annals of the rheumatic …, 2023 - ard.bmj.com
There is an increasing recognition of the importance of patient engagement and involvement
in health research, specifically within the field of rheumatology. In general, researchers in …

Patients are knowledge workers in the clinical information space

EL Papautsky, ES Patterson - Applied clinical informatics, 2021 - thieme-connect.com
Background Limited research exists on patient knowledge/cognition or “getting inside
patients' heads.” Because patients possess unique and privileged knowledge, clinicians …

[HTML][HTML] A Patient-Driven Mobile Health Innovation in Cystic Fibrosis Care: Comparative Cross-Case Study

P Mazzocato, JL Luckhaus, M Malmqvist Castillo… - Journal of Medical …, 2024 - jmir.org
Background Patient-driven innovation in health care is an emerging phenomenon with
benefits for patients with chronic conditions, such as cystic fibrosis (CF). However, previous …

'Share your views'—international consultation informs a patient engagement strategy for the Multinational Association of Supportive Care in Cancer

HR Wardill, YT Cheung, A Boltong… - Supportive Care in …, 2022 - Springer
Introduction Engaging with patients and the public (consumers and community) enhances
the relevance of cancer control developments; however, challenges remain to integrate into …

Parent values and preferences underpinning treatment decision-making in poor-prognosis childhood cancer: a scoping review

H Pearson H, G Bryan, C Kayum, F Gibson… - BMC pediatrics, 2022 - Springer
Background Parents of children who are diagnosed with a poor-prognosis cancer want to be
involved in making treatment-related decisions for their child. They often make repeated …