In an ideal world, all of us—patients, parents, family members, nurses, physicians, social
workers, therapists, pastoral care workers, and others—would always work together in a …

Overall pediatric mortality is decreasing in the United States. In 1980, more than 64,000
infants and children less than 15 years of age died in the United States. In striking contrast …

Objectives To assess differences between child age at first parental concern and age at first
parental discussion of concerns with a health care provider among children with autism …

Health care communication is a skill that is critical to safe and effective medical practice; it
can and must be taught. Communication skill influences patient disclosure, treatment …

OBJECTIVE. Despite recognition that dying children and their families have unique palliative
care needs, there has been little empirical inquiry of parent perspectives to improve the …

Purpose To ascertain parents' and physicians' assessments of quality of end-of-life care for
children with cancer and to determine factors associated with high-quality care as perceived …

Conclusions Parents place the highest priorities on quality of life, likelihood of improvement,
and perception of their child's pain when considering withdrawal of life support. Parents …

The Centers for Medicare and Medicaid Services (CMS) uses Adult Hospital Consumer
Assessment of Healthcare Providers and Systems (Adult HCAHPS®) scores for public …

In his seminal work on health care quality, Avedis Donabedian noted that patient satisfaction
was a key indicator of health care quality, and in the 1970s and 1980s a great deal of …

The concept of self‐management is based on the notion that it will improve wellbeing and
strengthen self‐determination and participation in health care, while reducing health care …