[PDF][PDF] Patient data ownership: who owns your health?

K Liddell, DA Simon, A Lucassen - Journal of Law and the …, 2021 - academic.oup.com
This article answers two questions from the perspective of United Kingdom law and policy:(i)
is health information property? and (ii) should it be? We argue that special features of health …

The ethics of complexity. Genetics and autism, a literature review

K Hens, H Peeters, K Dierickx - American Journal of Medical …, 2016 - Wiley Online Library
It is commonly believed that the etiology of autism is at least partly explained through
genetics. Given the complexity of autism and the variability of the autistic phenotype, genetic …

[HTML][HTML] Exploring Autistic adults' perspectives on genetic testing for autism

L Byres, E Morris, J Austin - Genetics in Medicine, 2023 - Elsevier
Purpose This study aimed to investigate the perspectives of Autistic adults regarding genetic
testing for autism. Although previous studies have explored the perceptions of genetic …

Behavioral genetics in criminal and civil courts

M Sabatello, PS Appelbaum - Harvard review of psychiatry, 2017 - journals.lww.com
Although emerging findings in psychiatric and behavioral genetics create hope for improved
prevention, diagnosis, and treatment of disorders, the introduction of such data as evidence …

[HTML][HTML] Autism genetic testing: a qualitative study of awareness, attitudes, and experiences among parents of children with autism spectrum disorders

LS Chen, L Xu, TY Huang, SU Dhar - Genetics in Medicine, 2013 - Elsevier
Purpose The goal of this first-of-its-kind qualitative study was to examine the awareness,
attitudes, and experiences among parents of autistic children regarding autism genetic …

Ethical considerations in conducting research on autism spectrum disorders in low and middle income countries

TC Daley, N Singhal, V Krishnamurthy - Journal of autism and …, 2013 - Springer
Autism spectrum disorder (ASD) is being identified in an ever-increasing number of
countries, including many that are low or middle income (LMIC). Research conducted in …

Parents' attitudes toward clinical genetic testing for autism spectrum disorder—data from a Norwegian sample

J Johannessen, T Nærland, S Hope, T Torske… - International Journal of …, 2017 - mdpi.com
Clinical genetic testing (CGT) of children with autism spectrum disorder (ASD) may have
positive and negative effects. Knowledge about parents' attitudes is needed to ensure good …

Knowledge, awareness, and perception on genetic testing for primary immunodeficiency disease among parents in Malaysia: a qualitative study

AHS Ahmad Azahari, F Hakim Zada, IH Ismail… - Frontiers in …, 2024 - frontiersin.org
Background Primary Immunodeficiency Disease (PID), also known as Inborn Errors of
Immunity (IEI), comprises a group of rare genetic disorders that impair the body's immune …

Is there concordance in attitudes and beliefs between parents and scientists about autism spectrum disorder?

RL Fischbach, MJ Harris, MS Ballan, GD Fischbach… - …, 2016 - journals.sagepub.com
There is no reported investigation comparing concordance in attitudes and beliefs about
autism spectrum disorder between parents of children with autism spectrum disorder and …

Autism spectrum disorders: a qualitative study of attitudes toward prenatal genetic testing and termination decisions of affected pregnancies

LS Chen, L Xu, SU Dhar, M Li, D Talwar… - Clinical genetics, 2015 - Wiley Online Library
In the United States, prenatal genetic testing (PGT) for Autism Spectrum Disorders (ASD) is
currently available via clinical genetic services. Such testing may inform parents about their …