The vision of the American Society of Human Genetics (ASHG) is that people everywhere
will realize the benefits of human genetics and genomics. Implicit in that vision is the …

Background: Secondary use of health data has reached unequaled potential to improve
health systems governance, knowledge, and clinical care. Transparency regarding this …

Many countries currently invest in technologies and data infrastructures to foster precision
medicine (PM), which is hoped to better tailor disease treatment and prevention to individual …

Research funders, professional associations, and scientific journals have increasingly
endorsed positions and established policies that recognize data as a public good. In the …

Background Precision medicine development is driven by the possibilities of next generation
sequencing, information technology and artificial intelligence and thus, raises a number of …

Scientific data‐sharing and open science initiatives are increasingly important mechanisms
for advancing the impact of genomic research. These mechanisms are being implemented …

Sixty‐one million Americans and approximately a billion people worldwide live with some
form of disability that limits one or more major life activities. The field of precision medicine …

Purpose: Returning genetic results to research participants is gaining momentum in the
USA. It is believed to be an important step in exploring the impact of efforts to translate …

This article aims to explore the ethical issues arising from attempts to diversify genomic data
and include individuals from underserved groups in studies exploring the relationship …

Advances in technology have resulted in the ability to sequence entire human genomes as a
routine, relatively inexpensive, investigation in healthcare. This offers many promises of …