Economic burden and quality of life of caregivers of patients with sickle cell disease in the United Kingdom and France: a cross-sectional study

M Besser, SB O'Sullivan, S Bourke… - Journal of Patient …, 2024 - Springer
Background Sickle cell disease (SCD), a genetic blood disorder that affects red blood cells
and oxygen delivery to body tissues, is characterized by haemolytic anaemia, pain …

Psychological Effectiveness of an Instructional Program on Mothers' knowledge towards Non-Pharmacological Pain Management among their Children

NFH AL-Abedi, AMAR Hassan - Journal for ReAttach Therapy and …, 2023 - jrtdd.com
Background: Pain is one of the main causes of distress and suffering in children receiving
care. Children who suffer from chronic pain have negative outcomes not only for their …

Effectiveness of An Educational Program on Mother's Knowledge toward their Children with Sickle Cell Anemia about Non-Pharmacological Approaches to Pain …

AI Abd-Alrazzaq, AR Aziz - Indian Journal of Forensic …, 2021 - search.ebscohost.com
Background: Sickle cell anemia is a chronic disease and a blood disorder that induces
cellular modification to the sickle-shaped form of defective hemoglobin in red blood cells. It …

Educational Program for Empowering Mothers of Fewer Than Five Children to Overcome Sickle Cell Crisis

NF Abolwafa, AS Ali - International journal of Nursing …, 2019 - nursingdidactics.com
Background: one of most blood disorder hereditary is sickle cell anemia; it has a series
crises and results to children who have it. Also, empowerment is measurement that …

[PDF][PDF] Assessment of Mothers' Knowledge about Their Children with Sickle Cell Anemia and Non-Pharmacological Approaches to Pain Management in Basra Center …

A Abd-Alrazzaq, A Aziz - Iraqi National Journal of Nursing Specialties, 2021 - iasj.net
Sickle cell anemia is an inherited disorder that occurs in the sixth amino acid locus in the
beta chain of the hemoglobin molecule. As a result, neither the hemoglobin molecule nor the …

Assistant Professor of Cardiology and angiology, Cardiology Department, Faculty of Medicine, Alexandria University, Egypt

O Ibrahim, H Helal, W Lotfy… - … Scientific Nursing Journal, 2024 - journals.ekb.eg
Background: Sickle-cell disease is a broad term that refers to a variety of diseases. The
majority of those affected have chronic anemia, with a hemoglobin level of roughly 8 g/dl …

[PDF][PDF] Effect of Educational Program on Mothers' Knowledge and Practices regarding Their Children with Splenomegaly

SF Ezaat, SM Sharshor, EW Abdelaal - Tanta Scientific Nursing …, 2024 - journals.ekb.eg
Background: The spleen, a multifunctional organ, plays a pivotal role in activehematopoiesis
and immune monitoring. Splenomegaly, characterized by an increase in spleensize due to …

Effect of reading an educational booklet about sickle cell disease on family members' knowledge

SV Figueiredo, TMM Moreira, DB Campos… - Rev. Rene, 2021 - biblat.unam.mx
Objective: to analyze the effect of reading an educational booklet about sickle cell disease
related to family members' knowledge. Methods: quasi-experimental study, with 20 childrens …

Effect of instructional based nursing intervention program on self-efficacy, depression and quality of life in children with sickle cell disease

N Farouk Abolwafa, F Nagy Kotb… - Egyptian Journal of …, 2023 - journals.ekb.eg
Background: The most prevalent inherited genetic illness in children is sickle cell disease
(SCD). As they deal with the difficulty of recurrent painful exacerbations or crises, which can …

Strengthening the Societal Pillars for effective management of sickle cell disease

R Kumar, D Patel, E Rao, N Saxena - Authorea Preprints, 2023 - techrxiv.org
Sickle cell disease (SCD) is a common inherited blood disorder of public health concern in
India. Individuals with SCD may encounter stigma, discrimination, and misconceptions about …