Estrategias de afrontamiento familiar y repercusiones en la salud familiar: Una revisión de la literatura

JM Martínez-Montilla, B Amador-Marín… - Enfermería …, 2017 - revistas.um.es
Introducción: La salud familiar ha constituido una preocupación para todos aquellos que
trabajan con la familia. La forma que tiene la familia de enfrentarse a los acontecimientos y …

[PDF][PDF] Family coping strategies and impacts on family health: A literature review

JM Martínez-Montilla, B Amador-Marín… - Enfermería …, 2017 - revistas.um.es
Introduction: Family health has been a concern for all those working with the family. The way
how the family has to face the stressful events and vital process is known as family coping …

Is preparation a good reason for prenatal genetic testing? Ethical and critical questions

M Michie - Birth Defects Research, 2020 - Wiley Online Library
As prenatal genetic testing technologies have become both easier and more accessible,
women are increasingly choosing prenatal genetic testing for a reason that is largely …

Health information seeking and people with disability: A systematic search and scoping review

J French-Lawyer, S Siano, M Ioerger, V Young… - Disability and Health …, 2021 - Elsevier
Background Health information and access to it are important aspects of maintaining health.
There are 61 million people with disability in the US, many of whom experience health …

Has the parent experience changed over time? A meta-analysis of qualitative studies of parents of children with disabilities from 1960 to 2012

SE Green, RB Darling, L Wilbers - Disability and intersecting statuses, 2013 - emerald.com
Purpose This chapter reviews qualitative research on parenting children with disabilities
published over the last 50 years to explore whether shifts in academic discourse and …

Struggles and joys: A review of research on the social experience of parenting disabled children

SE Green, RB Darling, L Wilbers - … looking at disability: What did we …, 2016 - emerald.com
Purpose This paper presents an updated summary of a meta-analysis of qualitative research
on parenting children with disabilities published over the last 50 years. In this summary, we …

Parents caring for children with normal life span threatening disabilities: A narrative review of literature

L Geuze, A Goossensen - Scandinavian Journal of Caring …, 2019 - Wiley Online Library
Background Parents caring for children with normal life span threatening disabilities are
exposed to numerous and accumulated stressors. In alignment with current approaches of …

Death talk: Basic linguistic rules and communication in perinatal and paediatric end-of-life discussions

V Xafis, A Watkins, D Wilkinson - Patient Education and Counseling, 2016 - Elsevier
Objective This paper considers clinician/parent communication difficulties noted by parents
involved in end-of-life decision-making in the light of linguistic theory. Methods Grice's …

A whole new world: a qualitative investigation of parents' experiences in transitioning their preterm child with cerebral palsy to developmental/rehabilitation services

M Ballantyne, S Bernardo, A Sozer… - Developmental …, 2019 - Taylor & Francis
Background: Parents' experiences transitioning their children from neonatal to
developmental/rehabilitation services (DRS) are unknown. Methods: A qualitative …

[PDF][PDF] Collaboration and teamwork with families and professionals

SA Raver, DC Childress - Family-Centered Early …, 2015 - brookespublishing.com
32 Foundations of Early Intervention an open discussion that allowed all team members,
including Mason's parents, to express their positions. Finally, the team determined that …