Advance care planning in dementia: do family carers know the treatment preferences of people with early dementia?

K Harrison Dening, M King, L Jones, V Vickestaff… - PloS one, 2016 - journals.plos.org
Background and Aims When a person with dementia (PWD) has lost the ability to make
treatment decisions, clinicians often rely on family carers to know and articulate these …

Ethical understandings of proxy decision making for research involving adults lacking capacity: a systematic review (framework synthesis) of empirical research

V Shepherd, K Hood, M Sheehan, R Griffith… - AJOB Empirical …, 2018 - Taylor & Francis
Background: Research involving adults lacking mental capacity relies on the involvement of
a proxy or surrogate, although this raises a number of ethical concerns. Empirical studies …

Advances and challenges in conducting ethical trials involving populations lacking capacity to consent: a decade in review

V Shepherd - Contemporary Clinical Trials, 2020 - Elsevier
Informed consent is an essential requirement prior to clinical trial participation, however
some 'vulnerable'groups, such as people with cognitive impairments and those in medical …

(Re) Conceptualising 'good'proxy decision-making for research: the implications for proxy consent decision quality

V Shepherd - BMC Medical Ethics, 2022 - Springer
People who are unable to make decisions about participating in research rely on proxies to
make a decision based on their wishes and preferences. However, patients rarely discuss …

Is best interests a relevant decision making standard for enrolling non-capacitated subjects into clinical research?

JT Berger - Journal of Medical Ethics, 2011 - jme.bmj.com
The 'best interests' decision making standard is used in clinical care to make necessary
health decisions for non-capacitated individuals for whom neither explicit nor inferred …

Using data to improve surrogate consent for clinical research with incapacitated adults

E Abdoler, D Wendler - Journal of Empirical Research on …, 2012 - journals.sagepub.com
Current practice relies on surrogates to enroll incapacitated adults in research. Yet, it is
unclear to what extent this practice protects adults who have lost the ability to consent for …

[PDF][PDF] Voor een ander: beslissings erant oordeli kheden in de erpleeghuisgeneeskunde

DP Touwen - 2008 - scholarlypublications …
Het meest gezongen verjaardagslied in het Nederlandse taalgebied is waarschijnlijk 'Lang
zal ze leven'. Dat met onze hedendaagse leefgewoonten en gezondheidszorg die wens …

Patients' concerns for family burden: a nonconforming preference in standards for surrogate decision making

JT Berger - The Journal of clinical ethics, 2009 - journals.uchicago.edu
An elderly patient is hospitalized for pneumonia. He is dependent on mechanical ventilation
and has a very poor prognosis for successful weaning. He is likely not to survive the hospital …

[PDF][PDF] decision-making for research: the implications for proxy consent decision quality

BMC Shepherd - 2022 - bmcmedethics.biomedcentral.com
People who are unable to make decisions about participating in research rely on proxies to
make a decision based on their wishes and preferences. However, patients rarely discuss …

Advance care planning in dementia: understanding the preferences of people with dementia and their carers

K Harrison Dening - 2014 - discovery.ucl.ac.uk
The UK End of Life Care Strategy proposed that all people should identify preferences for
end of life care. Aims To explore whether family carers of a person with dementia (PWD) can …