Outcome evidence for structured pediatric to adult health care transition interventions: a systematic review

P Gabriel, M McManus, K Rogers, P White - The Journal of pediatrics, 2017 - Elsevier
Objective To identify statistically significant positive outcomes in pediatric-to-adult transition
studies using the triple aim framework of population health, consumer experience, and …

Health care transition from pediatric to adult care: an evidence-based guideline

L Pape, G Ernst - European Journal of Pediatrics, 2022 - Springer
For consistent quality of treatment of young people with chronic health care needs, a
structured health care transition (HCT) from pediatric medicine to adult medical care is …

Long-term care of the pediatric kidney transplant recipient

HE Fernandez, BJ Foster - … Journal of the American Society of …, 2022 - journals.lww.com
Pediatric kidney transplant recipients are distinguished from adult recipients by the need for
many decades of graft function, the potential effect of CKD on neurodevelopment, and the …

An evidence map for interventions addressing transition from pediatric to adult care: a systematic review of systematic reviews

LC Hart, SV Patel-Nguyen, MG Merkley… - Journal of Pediatric …, 2019 - Elsevier
Problem Adolescents and young adults with chronic illnesses continue to face barriers as
they transition from pediatric to adult care. An evidence map can help to identify gaps in the …

Transition of young adult kidney transplant recipients

M Matsuda-Abedini, SD Marks, BJ Foster - Pediatric Nephrology, 2023 - Springer
Survival of pediatric kidney transplant recipients has improved over the past six decades.
However, adolescents and young adults still have the highest graft failure rates of any age …

Patient education interventions for adolescent and young adult kidney transplant recipients-a scoping review

M Corr, C McKeaveney, F Wurm, A Courtney, H Noble - PloS One, 2023 - journals.plos.org
Background Adolescence and young adulthood are high risk periods for kidney transplant
recipients. The reasons for this are complex; but are predominantly thought to be due to poor …

Patient and clinician opinions of patient reported outcome measures (PROMs) in the management of patients with rare diseases: a qualitative study

OL Aiyegbusi, F Isa, D Kyte, T Pankhurst… - Health and quality of life …, 2020 - Springer
Background Rare diseases may be life-threatening or chronically debilitating conditions.
Patient care needs are often complex and challenging to coordinate and deliver effectively …

[HTML][HTML] Meeting report: FDA public meeting on patient-focused drug development and medication adherence in solid organ transplant patients

R Ettenger, R Albrecht, R Alloway, O Belen… - American Journal of …, 2018 - Elsevier
The Food and Drug Administration (FDA) held a public meeting and scientific workshop in
September 2016 to obtain perspectives from solid organ transplant recipients, family …

Improving the quality of transition and transfer of care in young adults with congenital heart disease

IK Everitt, JF Gerardin, FH Rodriguez III… - Congenital heart …, 2017 - Wiley Online Library
The transition and transfer from pediatric to adult care is becoming increasingly important as
improvements in the diagnosis and management of congenital heart disease allow patients …

Transition of pediatric liver transplant patients to adult care: a review

JP Stevens, L Hall, NA Gupta - Current Gastroenterology Reports, 2021 - Springer
Abstract Purpose of Review Many pediatric liver transplant patients are surviving to
adulthood, and providers have come to recognize the importance of effectively transitioning …