Including digital sequence data in the Nagoya Protocol can promote data sharing

J Ambler, PK Dearden, P Wilcox, M Hudson… - Trends in …, 2021 - cell.com
The Nagoya Protocol (NP), a legal framework under the Convention on Biological Diversity
(CBD), formalises fair and equitable sharing of benefits arising from biological diversity. It …

Citizen science at the roots and as the future of forensic genetic genealogy

R Granja - International Journal of Police Science & …, 2023 - journals.sagepub.com
Forensic genetic genealogy is an emergent forensic technology that employs databases
used by citizens to upload genetic data voluntarily to search for criminal suspects and/or …

Credit for and control of research outputs in genomic citizen science

CJ Guerrini, JL Contreras - Annual Review of Genomics and …, 2020 - annualreviews.org
Citizen science encompasses activities with scientific objectives in which members of the
public participate as more than passive research subjects from whom personal data or …

How biomedical citizen scientists define what they do: It's all in the name

M Trejo, I Canfield, JO Robinson… - AJOB Empirical …, 2021 - Taylor & Francis
Background As citizen science continues to grow in popularity, there remains disagreement
about what terms should be used to describe citizen science activities and participants. The …

Core values of genomic citizen science: Results from a qualitative interview study

CJ Guerrini, M Trejo, I Canfield, AL McGuire - BioSocieties, 2020 - pmc.ncbi.nlm.nih.gov
Genomic citizen science initiatives that promote public involvement in the study or
manipulation of genetic information are flourishing. These initiatives are diverse and range …

Best Practices for Data Management in Citizen Science-An Indian Outlook

T Vattakaven, V Barve, G Ramaswami… - Biodiversity …, 2022 - journals.ku.edu
Citizen science has been in practice since the 1800s and is an important source of data for
scientists and other applied users. It plays a vital role in democratizing science, providing …

Posthuman freedom as the right to unlimited pleasure

YV Meliakova, II Kovalenko… - Amazonia …, 2021 - mail.amazoniainvestiga.info
The study discusses the evolution of the concept of “freedom”: from its humanistic existential
to transhumanistic corporeal meanings. The authors refer to the pure transhumanist …

[HTML][HTML] An Ethics Framework for Evaluating Ownership Practices in Biomedical Citizen Science

CJ Guerrini, AL McGuire - Citizen science: theory and practice, 2022 - ncbi.nlm.nih.gov
The collaborative nature of citizen science raises important questions about managing
ownership of its research outputs. Potential citizen science research outputs include data …

[HTML][HTML] Open science practices in psychiatric genetics: a primer

AP Kępińska, JS Johnson, LM Huckins - Biological Psychiatry Global Open …, 2024 - Elsevier
Open science ensures that research is transparently reported and freely accessible for all to
assess and collaboratively build on. Psychiatric genetics has led among the health sciences …

[HTML][HTML] Pirate Talk: Navigating Practical, Ethical, and Legal Issues Associated with Biomedical Citizen Science Interview Studies

CJ Guerrini, WB Brooks, SA McCurdy - Citizen science: theory and …, 2022 - ncbi.nlm.nih.gov
In citizen science, in-depth interviews have advanced the understanding of project leaders'
and citizen scientists' objectives, motivations, attitudes, and concerns. The issues …