Achieving goal-concordant care: a conceptual model and approach to measuring serious illness communication and its impact

JJ Sanders, JR Curtis, JA Tulsky - Journal of palliative medicine, 2018 - liebertpub.com
Background: High-quality care for seriously ill patients aligns treatment with their goals and
values. Failure to achieve “goal-concordant” care is a medical error that can harm patients …

Research design in end-of-life research: state of science

LK George - The gerontologist, 2002 - academic.oup.com
Purpose: The volume of research on end-of-life care, death, and dying has exploded during
the past decade. This article reviews the conceptual and methodological adequacy of end-of …

Family perspectives on end-of-life care at the last place of care

JM Teno, BR Clarridge, V Casey, LC Welch, T Wetle… - Jama, 2004 - jamanetwork.com
ContextOver the past century, nursing homes and hospitals increasingly have become the
site of death, yet no national studies have examined the adequacy or quality of end-of-life …

Trends in the aggressiveness of cancer care near the end of life

CC Earle, BA Neville, MB Landrum… - Journal of Clinical …, 2004 - ascopubs.org
Purpose To characterize the aggressiveness of end-of-life cancer treatment for older adults
on Medicare, and its relationship to the availability of healthcare resources. Patients and …

Racial variations in end‐of‐life care

FP Hopp, SA Duffy - Journal of the American Geriatrics Society, 2000 - Wiley Online Library
OBJECTIVES: To identify differences in advanced care planning and end‐of‐life decision‐
making between whites and blacks aged 70 and older. DESIGN: The Asset and Health …

[HTML][HTML] Validation of toolkit after-death bereaved family member interview

JM Teno, B Clarridge, V Casey… - Journal of pain and …, 2001 - Elsevier
The purpose of this study was to examine the reliability and validity of the Toolkit After-Death
Bereaved Family Member Interview to measure quality of care at the end of life from the …

Factors associated with site of death: a national study of where people die

S Weitzen, JM Teno, M Fennell, V Mor - Medical care, 2003 - journals.lww.com
Objectives. Recent public attention has focused on quality of care for the dying. Where one
dies is an important individual and public health concern. Materials and methods. The 1993 …

Initial assessment of a new instrument to measure quality of life at the end of life

KE Steinhauser, HB Bosworth, EC Clipp… - Journal of palliative …, 2002 - liebertpub.com
Purpose: We conducted this study to pilot a new multidimensional instrument to assess the
quality of life at the end of life. Methods: Items were derived from focus groups and a national …

Measuring end-of-life care outcomes retrospectively

JM Teno - Journal of palliative medicine, 2005 - liebertpub.com
Fundamental to measuring both the processes and outcomes of end-of-life care is that one
understand the context and distinct differences of that care. Measurement plays an important …

[HTML][HTML] Family evaluation of hospice care: results from voluntary submission of data via website

SR Connor, J Teno, C Spence, N Smith - Journal of pain and symptom …, 2005 - Elsevier
The Family Evaluation of Hospice Care (FEHC) survey is a 61-item questionnaire that
surveys family members about care provided to the decedent by the hospice. Hospices …