Towards equitable and trustworthy genomics research

J Atutornu, R Milne, A Costa, C Patch, A Middleton - EBioMedicine, 2022 - thelancet.com
The representation of traditionally scientifically underserved groups in genomic research
continues to be low despite concerns about equity and social justice and the scientific and …

Therapeutically targeting the unique disease landscape of pediatric high-grade gliomas

D Fernando, AU Ahmed, BRG Williams - Frontiers in Oncology, 2024 - frontiersin.org
Pediatric high-grade gliomas (pHGG) are a rare yet devastating malignancy of the central
nervous system's glial support cells, affecting children, adolescents, and young adults …

When biobanks meet religion: Association between religiosity and attitudes of Polish medical students toward biobanking of human biological material for research …

J Domaradzki, D Walkowiak - Journal of religion and health, 2024 - Springer
While biobanking is expanding globally, the empirical evidence concerning the impact of
religion on future healthcare professionals' awareness and willingness to donate …

Associations between the willingness to donate samples to biobanks and selected psychological variables

J Pawlikowski, M Wiechetek… - International Journal of …, 2022 - mdpi.com
Over the past few decades, there has been a dynamic development of biobanks collecting
human biological material and data. Advances in biomedical research based on biobanks …

Public awareness and attitudes toward biobank and sample donation: A regional Chinese survey

Z Gao, Y Huang, F Yao, Z Zhou - Frontiers in public health, 2022 - frontiersin.org
Background The biobank is an extraordinary aid to research and scientific progress. Public
involvement in biobanks, necessary for their development, is limited due to inadequate …

Perceptions, attitudes, and willingness of the public in low-and middle-income countries of the Arab region to participate in biobank research

M Ahram, F Abdelgawad, SA ElHafeez… - BMC medical …, 2022 - Springer
Population-based genomics studies have proven successful in identifying genetic variants
associated with diseases. High-quality biospecimens linked with informative health data …

Public trust and trustworthiness in biobanking: the need for more reflexivity

G Samuel, R Broekstra, F Gille… - Biopreservation and …, 2022 - liebertpub.com
Low levels of public trust in biobanks are perceived to be a deterrent to participation and a
threat to their sustainability. Acting in a “trustworthy” manner is seen to be one approach to …

It is not a big deal: a qualitative study of clinical biobank donation experience and motives

N Antonova, K Eritsyan - BMC Medical Ethics, 2022 - Springer
Background The success of biobanking is directly linked to the willingness of people to
donate their biological materials for research and storage. Ethical issues related to patient …

Assessment of biobanking knowledge and attitudes towards biospecimen donation among healthcare providers in Saudi Arabia

A Buhmeida, M Assidi, O Alyazidi, DI Olwi… - International journal of …, 2022 - mdpi.com
Background: Biobanking is a critical cornerstone of the global shift towards precision
medicine (PM). This transformation requires smooth and informed interaction between a …

A leap of faith: building the trust in human biobanks

Y Zhang, B Liao, R Lei - Frontiers in Genetics, 2023 - frontiersin.org
Background: Human biobanks are an essential resource for contemporary medical
research, crucial in treating and preventing human diseases and improving health. Public …