Models of palliative care delivery for individuals with cystic fibrosis: Cystic Fibrosis Foundation evidence-informed consensus guidelines
D Kavalieratos, AM Georgiopoulos… - Journal of Palliative …, 2021 - liebertpub.com
Cystic fibrosis (CF) affects more than 70,000 individuals and their families worldwide.
Although outcomes for individuals with CF continue to improve, it remains a life-limiting …
Although outcomes for individuals with CF continue to improve, it remains a life-limiting …
[HTML][HTML] Prevalence of unmet palliative care needs in adults with cystic fibrosis
ET Trandel, JM Pilewski, EP Dellon, K Jeong… - Journal of Cystic …, 2020 - Elsevier
Background Physical and emotional burdens impair quality of life (QoL) in many adults with
cystic fibrosis (CF). Palliative care (PC) improves QoL in other serious illnesses, yet the full …
cystic fibrosis (CF). Palliative care (PC) improves QoL in other serious illnesses, yet the full …
Symptom burden and unmet existential needs in adults with cystic fibrosis
ET Trandel, JM Pilewski, EP Dellon… - Western Journal of …, 2019 - journals.sagepub.com
Although patients with cystic fibrosis (CF) experience many symptoms and impaired quality
of life, little is known about existential distress. This multivariable logistic regression …
of life, little is known about existential distress. This multivariable logistic regression …
Palliative care skills in CF: Perspectives of adults with CF, caregivers, and CF care team members
ET Trandel, D Kavalieratos, M Basile… - Pediatric …, 2020 - Wiley Online Library
Background The role of cystic fibrosis (CF) care team members in delivering palliative care
(PC) remains undefined. We aimed to understand the PC skills of CF care teams. Methods …
(PC) remains undefined. We aimed to understand the PC skills of CF care teams. Methods …
Integrating specialist palliative care to improve care and reduce suffering: cystic fibrosis (InSPIRe: CF)–study protocol for a multicentre randomised clinical trial
J Lowers, EP Dellon, A Stephenson… - BMJ Open …, 2022 - bmjopenrespres.bmj.com
Introduction Cystic fibrosis (CF) is a life-limiting genetic disorder estimated to affect more
than 160 000 individuals and their families worldwide. People living with CF commonly …
than 160 000 individuals and their families worldwide. People living with CF commonly …
[HTML][HTML] The role of palliative care in lung transplantation
E Nolley, M Morrell - Journal of Thoracic Disease, 2021 - ncbi.nlm.nih.gov
Lung transplantation confers meaningful benefit for patients by extending life and improving
quality of life. Palliative care is a medical specialty that likewise aims to improve the quality …
quality of life. Palliative care is a medical specialty that likewise aims to improve the quality …