Background Individualized family-centered developmental care (IFDC) is considered the
standard of care for premature/medically fragile newborns and their families in intensive …

Introduction: Lactating parents of infants hospitalised for critical congenital heart disease
(CHD) face significant barriers to direct breastfeeding. While experiences of directly …

Infants and children born with CHD are at significant risk for neurodevelopmental delays and
abnormalities. Individualised developmental care is widely recognised as best practice to …

Critical congenital heart disease (CHD) presents a lasting threat to quality of life through its
adverse impact on neurodevelopmental and psychosocial outcomes. As recognition of this …

Background Following prenatal diagnosis of critical congenital heart disease (CCHD),
parents encounter emotional distress while facing caregiving challenges. Supportive psycho …

Objectives This retrospective cohort study investigates how parenting stress, measured at 4
months of age by use of a classic three-dimensional parent-reported scale (Parenting Stress …

This qualitative study aimed to explore how having a child with a functionally univentricular
heart (FUH) affected mothers' experiences of their parental role and identity. Eight mothers …

Abstract Background Infants with a Congenital Heart Defect (CHD) are now surviving longer
with more medical treatment available. Many of these infants undergo hospitalisation for life …

Background Parents of newborns with congenital heart disease (CHD) are at risk for anxiety,
depression, and post-traumatic stress. Few studies have examined whether modifiable …

Objective To provide an overview of the development of the Preparing Heart and
Mind™(PHM™) care program designed for parents with a prenatal diagnosis of critical …