Digital health, big data and smart technologies for the care of patients with systemic autoimmune diseases: where do we stand?

H Bergier, L Duron, C Sordet, L Kawka… - Autoimmunity …, 2021 - Elsevier
The past decade has seen tremendous development in digital health, including in innovative
new technologies such as Electronic Health Records, telemedicine, virtual visits, wearable …

[HTML][HTML] Effectiveness of eHealth and mHealth interventions supporting children and young people living with juvenile idiopathic arthritis: systematic review and meta …

S Butler, D Sculley, D Santos, A Fellas… - Journal of Medical …, 2022 - jmir.org
Background Juvenile idiopathic arthritis (JIA) management aims to promote remission
through timely, individualized, well-coordinated interdisciplinary care using a range of …

[HTML][HTML] Validation of an electronic visual analog scale mHealth tool for acute pain assessment: prospective cross-sectional study

C Escalona-Marfil, A Coda, J Ruiz-Moreno… - Journal of medical …, 2020 - jmir.org
Background Accurate measurement of pain is required to improve its management and in
research. The visual analog scale (VAS) on paper format has been shown to be an accurate …

[HTML][HTML] Feasibility and safety of a 6-month exercise program to increase bone and muscle strength in children with juvenile idiopathic arthritis

KM Houghton, HM Macdonald, HA McKay… - Pediatric …, 2018 - Springer
Background Arthritis in childhood can be associated with muscle weakness around affected
joints, low bone mass and low bone strength. Exercise is recognized as an important part of …

The iCanCope pain self-management application for adolescents with juvenile idiopathic arthritis: a pilot randomized controlled trial

C Lalloo, LR Harris, AS Hundert, R Berard… - …, 2021 - academic.oup.com
Objectives To evaluate the feasibility and preliminary effectiveness of iCanCope with Pain
(iCanCope), a smartphone-based pain self-management program, in adolescents with JIA …

[HTML][HTML] Comparison of a mobile health electronic visual analog scale app with a traditional paper visual analog scale for pain evaluation: cross-sectional …

A Turnbull, D Sculley, C Escalona-Marfil… - Journal of medical …, 2020 - jmir.org
Background Accurate quantification of pain in a clinical setting is vital. The use of an
electronic pain scale enables data to be collected, analyzed, and utilized much faster …

[HTML][HTML] Empowering young people living with juvenile idiopathic arthritis to better communicate with families and care teams: content analysis of semistructured …

SW Grande, MR Longacre, K Palmblad… - JMIR mHealth and …, 2019 - mhealth.jmir.org
Background: Young people living with juvenile idiopathic arthritis (JIA) face a number of
communication barriers for achieving optimal health as they transition from pediatric care …

[HTML][HTML] Impact of an electronic health service on child participation in pediatric oncology care: Quasiexperimental study

BM Gilljam, JM Nygren, P Svedberg… - Journal of Medical Internet …, 2020 - jmir.org
Background For children 6-12 years old, there is a shortage of electronic Health (eHealth)
services that promote their participation in health care. Therefore, a digital communication …

[HTML][HTML] Paediatric Rheumatology Fails to Meet Current Benchmarks, a Call for Health Equity for Children Living with Juvenile Idiopathic Arthritis, Using Digital Health …

S Butler, D Sculley, D Santos, X Girones… - Current rheumatology …, 2024 - Springer
Abstract Purpose of Review This critical review begins by presenting the history of Juvenile
Idiopathic Arthritis (JIA) management. To move the conversation forward in addressing the …

[HTML][HTML] Adherence, helpfulness and barriers to treatment in juvenile idiopathic arthritis–data from a German Inception cohort

S Kirchner, J Klotsche, I Liedmann, M Niewerth… - Pediatric …, 2023 - Springer
Objectives To develop and evaluate German versions of the Parent Adherence Report
Questionnaire (PARQ) and Child Adherence Report Questionnaire (CARQ) and to evaluate …