Biobanking and risk assessment: a comprehensive typology of risks for an adaptive risk governance

K Akyüz, G Chassang, M Goisauf, Ł Kozera… - Life Sciences, Society …, 2021 - Springer
Biobanks act as the custodians for the access to and responsible use of human biological
samples and related data that have been generously donated by individuals to serve the …

Fundamental considerations for biobank legacy planning

LAM Matzke, B Fombonne, PH Watson… - Biopreservation and …, 2016 - liebertpub.com
Biobanking in its various forms is an activity involving the collection of biospecimens and
associated data and their storage for differing lengths of time before use. In some cases …

[图书][B] The new health bioeconomy: R&D policy and innovation for the twenty-first century

J Mittra - 2015 - books.google.com
This book provides new insights into how new biology, and the emergence of" translational"
policies to drive the health bioeconomy, is reshaping the innovation ecosystem for new …

Shortcut to success? Negotiating genetic uniqueness in global biomedicine

H Tarkkala, A Tupasela - Social studies of science, 2018 - journals.sagepub.com
Since the sequencing of the human genome, as well as the completion of the first Human
Genome Diversity Project, the benefits of studying one human population over another has …

Biobank bootstrapping: Is biobank sustainability possible through cost recovery?

M Albert, J Bartlett, RN Johnston… - Biopreservation and …, 2014 - liebertpub.com
Background: The pre-eminent goal of biobanks is to accelerate scientific discovery and
support improvements in healthcare through the supply of high quality biospecimens to …

Closure of a human tissue biobank: individual, institutional, and field expectations during cycles of promise and disappointment

N Stephens, R Dimond - New genetics and society, 2015 - Taylor & Francis
Biobanks are increasingly being established to act as mediators between patient-donors
and researchers. In practice, some of these will close. This paper details the experiences of …

Building research support capacity across human health biobanks during the COVID-19 pandemic

JA Byrne, JE Carpenter, C Carter, K Phillips… - Biomarker …, 2021 - journals.sagepub.com
Human health biobanks are forms of research infrastructure that supply biospecimens and
associated data to researchers, and therefore juxtapose the activities of clinical care and …

Data hugging in European biobank networks

A Tupasela - Science as Culture, 2021 - Taylor & Francis
The sharing, circulation, distribution, and use of human tissue samples and related data
have become a major political and scientific pre-occupation during the past two decades. In …

Supporting Stewardship: Funding, Utilization, and Sustainability as Ethical Concerns in Networked Biobanking

RJ Cadigan, R Ponsaran, C Rich… - AJOB Empirical …, 2024 - Taylor & Francis
Background The literature on the ethics of biobanking often overlooks the practical
operations of biobanks. The ethics of stewardship requires that biobank resources are used …

Genome Finland: From rare diseases to data economy

I Helén, K Snell, H Tarkkala, A Tupasela - 2024 - library.oapen.org
Genome Finland tells a story of genomic medicine in Finland from the study of rare Finnish
diseases in the 1960s and 1970s to the implementation of personalized medicine in the …