Stroke in Africa: profile, progress, prospects and priorities

RO Akinyemi, B Ovbiagele, OA Adeniji… - Nature Reviews …, 2021 - nature.com
Stroke is a leading cause of disability, dementia and death worldwide. Approximately 70% of
deaths from stroke and 87% of stroke-related disability occur in low-income and middle …

Related stakeholders' perspectives on sociocultural considerations in biobanking practice in South Africa

S Singh, RJ Cadigan, K Moodley - Biopreservation and Biobanking, 2023 - liebertpub.com
Background: Biobanking practice continues to proliferate in South Africa, yet little is known
about how stakeholders engage with social, cultural, and religious considerations in this …

Biological sample donation and informed consent for neurobiobanking: Evidence from a community survey in Ghana and Nigeria

A Singh, O Arulogun, J Akinyemi, M Nichols… - Plos one, 2022 - journals.plos.org
Introduction Genomic research and neurobiobanking are expanding globally. Empirical
evidence on the level of awareness and willingness to donate/share biological samples …

Promoting diversity and inclusion in neuroscience and neuroethics

OP Matshabane - EBioMedicine, 2021 - thelancet.com
Neuroscience is moving at breakneck speed towards understanding how the nervous
system and the human brain function in order to develop novel treatments for neurological …

An equity and justice-informed ethical framework to guide incidental findings in brain imaging research

SMM Bhaskar - Clinics and Practice, 2023 - mdpi.com
The handling of incidental findings (IFs) in brain imaging studies has been a source of
contention among scientists and bioethicists. A conceptual framework informed by diversity …

Genome Tunisia Project: paving the way for precision medicine in North Africa

Y Hamdi, M Trabelsi, K Ghedira, M Boujemaa… - Genome Medicine, 2024 - Springer
Background Key discoveries and innovations in the field of human genetics have led to the
foundation of molecular and personalized medicine. Here, we present the Genome Tunisia …

Ethical, Legal, and Social Implications (ELSI) research: methods and approaches

U Ogbogu, N Ahmed - Current Protocols, 2022 - Wiley Online Library
The article provides an overview of select methodologies that are commonly used in ELSI
(“ethical, legal, and social implications”) research. ELSI is a field that focuses on the analysis …

[PDF][PDF] Ethics considerations for precision medicine research and genetic testing in low-and middle-income countries

S Mubarak, M Ashraf - Eastern Mediterranean Health Journal, 2024 - iris.who.int
Background: Genetic data transfer within multicentre clinical trials conducted in low-and
middle-income countries is common and must be communicated to study participants as part …

Community engagement in genetics and genomics research: a qualitative study of the perspectives of genetics and genomics researchers in Uganda

H Nankya, E Wamala, VP Alibu, J Barugahare - BMC Medical Ethics, 2024 - Springer
Background Generally, there is unanimity about the value of community engagement in
health-related research. There is also a growing tendency to view genetics and genomics …

Capacity-Building for Stroke Genomic Research Data Collection: The African Neurobiobank Ethical, Legal, and Social Implications Project Experience

EO Uvere, M Nichols, BR Ojebuyi, SY Isah… - Biopreservation and …, 2023 - liebertpub.com
Background: The fields of stroke genomics, biobanking, and precision medicine are rapidly
expanding in sub-Saharan Africa. However, the ethical, legal, and social implications (ELSI) …