Research involvement and engagement of adolescent and young adults in a cancer trajectory: a 5-year experience from a patient support facility at a university …

H Pappot, SK Meier, M Hjerming, K Piil… - Research Involvement …, 2023 - Springer
Background The purpose of this case study is to describe how a vulnerable group of patients
can be included in research. The activities, challenges, lessons learned, and reflections on …

[HTML][HTML] Development of Quality of Life in Adolescents and Young Adults With Cancer Using a Patient Support Smartphone App: Prepost Interventional Study

L Bentsen, S Hanghøj, M Hjerming, MB Bergmann… - JMIR cancer, 2023 - cancer.jmir.org
Background Adolescents and young adults often experience existential concerns in addition
to side effects during a cancer trajectory, which they often carry alone. Thus, cohesion with …

[HTML][HTML] A qualitative evaluation of the Youth-Check program: a psychosocial intervention aimed at young people with cancer

S Hanghøj, KA Boisen, MF Nielsen, H Pappot… - Seminars in Oncology …, 2022 - Elsevier
Objectives In many countries, there is a lack of structured psychosocial health interventions
to support young people with cancer. Thus, we developed the nurse-led intervention the …

Setting up an advisory group to explore the role of partners of adolescents and young adults in cancer care

J Davies, J Cargill, H Mistry - Cancer Nursing Practice, 2024 - journals.rcni.com
Minimal research has been undertaken into needs of partners of adolescents and young
adults with cancer. However, it is understood to be important for adolescents and young …