European variation in decision-making and parental involvement during preterm birth

K Gallagher, J Martin, M Keller, N Marlow - Archives of Disease in …, 2014 - fn.bmj.com
Background Preterm birth is a major global public health issue due to its prevalence, impact
upon morbidity and mortality, and subsequent cost implications. Yet, policy analysis has not …

Perinatal management of extreme preterm birth before 27 weeks of gestation: a framework for practice

H Mactier, SE Bates, T Johnston, C Lee-Davey… - Archives of Disease in …, 2020 - fn.bmj.com
Executive summary This Framework has been developed by a multidisciplinary working
group in the light of evidence of improving outcomes for babies born before 27 completed …

Decision-making at the limit of viability: differing perceptions and opinions between neonatal physicians and nurses

HU Bucher, SD Klein, MJ Hendriks, R Baumann-Hölzle… - BMC pediatrics, 2018 - Springer
Background In the last 20 years, the chances for intact survival for extremely preterm infants
have increased in high income countries. Decisions about withholding or withdrawing …

Needs perceived by parents of preterm infants: integrating care into the early discharge process

I Toral-López, M Fernández-Alcántara… - Journal of pediatric …, 2016 - Elsevier
Introduction The birth of a preterm infant can have a great emotional impact on the parents
when the length of stay is long. Early discharge programs facilitate the transition to the home …

Navigating the dangerous terrain of moral distress: understanding response patterns in the NICU

S Thorne, L Konikoff, H Brown… - Qualitative health …, 2018 - journals.sagepub.com
Moral distress is a well-recognized and ubiquitous aspect of health care professional
practice in the neonatal intensive care unit (NICU) context. We used interpretive description …

End-of-life decisions in neonatal care: a conversation analytical study

N Marlow, C Shaw, K Connabeer… - Archives of Disease in …, 2021 - fn.bmj.com
Objective To understand the dynamics of conversations between neonatologists and
parents concerning limitation of life-sustaining treatments. Design Formal conversations …

Moral distress in the resuscitation of extremely premature infants

J Molloy, M Evans, K Coughlin - Nursing Ethics, 2015 - journals.sagepub.com
Objective: To increase our understanding of moral distress experienced by neonatal
registered nurses when directly or indirectly involved in the decision-making process of …

Outcomes from the other side

N Marlow, S Hoy, A Peacock, J Kamphuis - Seminars in Fetal and Neonatal …, 2020 - Elsevier
Parents and individuals who were born preterm rarely contribute to research study design in
order to ensure that outcomes are reported that are of relevance to them. In this article we …

Initiating end-of-life decisions with parents of infants receiving neonatal intensive care

C Shaw, K Connabeer, P Drew, K Gallagher… - Patient education and …, 2020 - Elsevier
Objective To investigate whether parent-initiated or doctor-initiated decisions about limiting
life-sustaining treatment (LST) in neonatal care has consequences for how possible courses …

The attitudes of neonatologists towards extremely preterm infants: a Q methodological study

K Gallagher, N Aladangady, N Marlow - Archives of Disease in …, 2016 - fn.bmj.com
Objectives The attitudes and biases of doctors may affect decision making within Neonatal
Intensive Care. We studied the attitudes of neonatologists in order to understand how they …