Factors influencing the quality of life in inflammatory bowel disease: A comprehensive review

S Khan, SA Sebastian, MP Parmar, N Ghadge, I Padda… - Disease-a-Month, 2024 - Elsevier
Inflammatory bowel disease (IBD) is a group of chronic relapsing disorders, including
Crohn's disease (CD) and ulcerative colitis (UC), which affects an increasing number of …

Identification of the informational and supportive needs of patients diagnosed with inflammatory bowel disease: a scoping review

N Norouzkhani, M Faramarzi… - Frontiers in …, 2023 - frontiersin.org
Background Inflammatory Bowel Disease (IBD) affects the quality of life. Patient education
and support needs are crucial components of comprehensive chronic illness care. The main …

Patterns of disruptions: Complexities of discursive-embodied triggers and resilience responses of individuals with autoimmune diseases

B Siegenthaler, JV Worwood… - Communication …, 2024 - Taylor & Francis
Individuals with autoimmune diseases face a multiplicity of adverse disruptions throughout
their lives that can span physical, emotional, social, and financial contexts. We employed the …

Role of empowerment and sense of community on online social health support group

S Sharma, A Khadka - Information Technology & People, 2019 - emerald.com
Purpose Drawing on the taxonomy of patient empowerment and a sense of community
(SoC), the purpose of this paper is to analyze the factors that impact the intention of the …

Promoting psycho-social wellbeing for engaging inflammatory bowel disease patients in their care: an Italian consensus statement

G Graffigna, C Bosio, F Pagnini, E Volpato, E Previtali… - BMC psychology, 2021 - Springer
Background Inflammatory bowel diseases (IBD) are remitting and relapsing diseases that
mainly interest the gastrointestinal tract. IBD is associated with a condition of psycho-social …

Characteristics and associated factors of health information-seeking behaviour among patients with inflammatory bowel disease in the digital era: a scoping review

Z Ni, L Zhu, S Li, Y Zhang, R Zhao - BMC Public Health, 2024 - Springer
Abstract Background Health Information-Seeking Behaviour (HISB) is necessary for self-
management and medical decision-making among patients with inflammatory bowel …

Inflammatory bowel disease patients' perspectives of non-medical needs

N Norouzkhani, M Faramarzi, A Bahari, JS Shirvani… - BMC …, 2024 - Springer
Background Inflammatory bowel disease (IBD) imposes a huge burden on the healthcare
systems and greatly declines the patient's quality of life. However, there is a paucity of …

Health information processing and symptom management in a cross-cultural setting: Insights from IBD patients

B Zhong, W Xie, S Davis Kempton, M Zhi… - Health …, 2024 - Taylor & Francis
The affordances of social media, have significantly transformed how patients seek and
process health information online, including those with chronic diseases like irritable bowel …

Belonging in practice: using communities of practice theory to understand support groups

KE Anthony, CE Reif‐Stice, JO Iverson… - The handbook of …, 2020 - Wiley Online Library
Social support groups provide both a space for knowledge management and a means to
connect with others by developing face‐to‐face and online communities. This chapter …

Online support groups: the good, the bad, and the motivated

JA Turner - Journal of Consumer Health on the Internet, 2017 - Taylor & Francis
Online support groups exist for a multitude of health conditions. Group participants tend to
have unmet needs for emotional or psychological support, socialization, information, or …