Empowering parents of pediatric surgical oncology patients through collaborative engagement with surgeons

EM Carlisle, LA Shinkunas, MT Lieberman… - Journal of pediatric …, 2023 - Elsevier
Background Ninety percent of parents of pediatric oncology patients report distressing,
emotionally burdensome healthcare interactions. Assuring supportive, informative treatment …

A valued voice: A qualitative analysis of parental decision‐making preferences in emergent paediatric surgery

EM Carlisle, LA Shinkunas, E Ruba… - Health …, 2023 - Wiley Online Library
Introduction Shared decision‐making, with an emphasis on patient autonomy, is often
advised in healthcare decision‐making. However, this may be difficult to implement in …

Discordance between subjective and objective assessments of activity after pediatric appendectomy

SC Linton, S Kwon, C De Boer, S Zeineddin… - Journal of Surgical …, 2023 - Elsevier
Background Physical activity recovery after pediatric surgery can be assessed using
objective measures such as step counts, but practice currently relies on subjective …

[HTML][HTML] Parental perspectives and concerns regarding exotropia surgery and comparison with clinicians' predictions

S Jeong, SY Han, S Moon, D Lee, SY Kim… - Journal of American …, 2024 - Elsevier
Purpose To evaluate parental perspectives and concerns regarding exotropia surgery and
compare them with clinicians' predictions of parental responses in Korean pediatric patients …

“Reading the room:” A qualitative analysis of pediatric surgeons' approach to clinical counseling

EM Carlisle, LA Shinkunas, MT Lieberman… - Journal of pediatric …, 2023 - Elsevier
Background In our prior analysis of parental preferences for discussions with pediatric
surgeons, we identified that parents prefer more guidance from surgeons when discussing …

Evaluation of a Novel Question Prompt List in Pediatric Surgical Oncology

EM Carlisle, LA Shinkunas, MT Lieberman… - Journal of Surgical …, 2023 - Elsevier
Introduction Parents of children with cancer describe interactions with clinicians as
emotionally distressing. Patient engagement in treatment discussions decreases decisional …

The parental experience of participating in surgical decision-making regarding one's child with a congenital heart disease in Taiwan

MH Wu, TY Lee, MH Lin - Journal of Pediatric Nursing, 2023 - Elsevier
Purpose This study explores how parents experienced the surgical decision-making process
for their child with a congenital heart disease (CHD). Design and methods Purposive …

Medial Patellofemoral Ligament Reconstruction in Adolescents: What Parents Care About

S Culpepper, R Rajendra, P Suwak… - Journal of Pediatric …, 2025 - journals.lww.com
Methods: A survey was developed using Sawtooth Software (Lighthouse Studio version 9.2.
0) to gather demographic information and preferences on surgical scenarios via CBC …

Do Patients Want to Be Involved in Their Carpal Tunnel Surgery Decisions? A Multicenter Study

AK Roe, SL Eppler, S Kakar, E Akelman, CJ Got… - The Journal of Hand …, 2023 - Elsevier
Purpose Carpal tunnel syndrome requires multiple decisions during its management,
including regarding preoperative studies, surgical technique, and postoperative wound …

[HTML][HTML] Tools for effective patient education to manage outcome expectations in paediatric facial reanimation: a systematic review

D Reissis, C Zubler, E de Buitleir, S Brown… - Plastic and Aesthetic …, 2024 - oaepublish.com
Aim: Informed consent for paediatric facial reanimation requires effective patient/parent
education and involvement in a shared decision-making (SDM) process to help set their …