Dying in America: Improving quality and honoring individual preferences near the end of life

Committee on Approaching Death… - 2015 - books.google.com
For patients and their loved ones, no care decisions are more profound than those made
near the end of life. Unfortunately, the experience of dying in the United States is often …

Pediatric palliative care in oncology

J Snaman, S McCarthy, L Wiener… - Journal of clinical oncology, 2020 - ascopubs.org
Pediatric palliative care aims to alleviate suffering and improve the quality of life of children
with serious disease and increase support for their parents and other family members …

Improved quality of life at end of life related to home-based palliative care in children with cancer

SJ Friedrichsdorf, A Postier, J Dreyfus… - Journal of palliative …, 2015 - liebertpub.com
Background: Nearly 2000 children die due to a malignancy in the United States annually.
Emerging data suggest that home is the desired location of care for children with cancer at …

Pediatric long‐term home mechanical ventilation: twenty years of follow‐up from one Canadian center

R Amin, P Sayal, F Syed, A Chaves… - Pediatric …, 2014 - Wiley Online Library
Background Canadian longitudinal data from a pediatric domiciliary long‐term mechanical
ventilation (LTMV) program is lacking. Objective Our aim was to report on the clinical …

Pediatric palliative care in the community

EC Kaye, J Rubenstein, D Levine… - CA: a cancer journal …, 2015 - Wiley Online Library
Answer questions and earn CME/CNE Early integration of pediatric palliative care (PPC) for
children with life‐threatening conditions and their families enhances the provision of holistic …

Early integration of palliative care for children with high‐risk cancer and their families

EC Kaye, S Friebert, JN Baker - Pediatric blood & cancer, 2016 - Wiley Online Library
Despite increasing data to support pediatric palliative care (PPC) as an integral component
of high‐quality care for children with life‐threatening conditions and their families, timely …

Delivering pediatric palliative care: from denial, palliphobia, pallilalia to palliactive

SJ Friedrichsdorf, E Bruera - Children, 2018 - mdpi.com
Among the over 21 million children with life-limiting conditions worldwide that would benefit
annually from a pediatric palliative care (PPC) approach, more than eight million would …

Palliative care programs in children's hospitals

MS Weaver, VK Shostrom, EC Kaye, A Keegan… - …, 2022 - publications.aap.org
METHODS Analyses of the multicenter Children's Hospital Association Annual Benchmark
Report 2020 survey for prevalence of PPC programs and association with operational …

Paediatric palliative care improves patient outcomes and reduces healthcare costs: evaluation of a home-based program

PH Chong, JA De Castro Molina, K Teo, WS Tan - BMC palliative care, 2018 - Springer
Background Around the world, different models of paediatric palliative care have responded
to the unique needs of children with life shortening conditions. However, research …

Palliative care initiation in pediatric oncology patients: A systematic review

BT Cheng, M Rost, E De Clercq, L Arnold… - Cancer …, 2019 - Wiley Online Library
Palliative care (PC) aims to improve quality of life for patients and their families. The World
Health Organization and American Academy of Pediatrics recommend that PC starts at …